Aim: To identify the contextual factors influencing parents' assessments of the family-centredness of care received during a paediatric emergency department visit.
Design: A qualitative cross-sectional case study.
Methods: We interviewed parents who were at their child's bedside during an emergency department encounter. We independently coded the first 3 transcripts and met to discuss the coding structure and to refine existing codes, add new codes and develop tentative categories. We repeated this process for every 3-5 transcripts until thematic saturation was reached.
Results: We conducted 16 interviews and identified 2 themes: (1) Not all parents expected physicians to provide family-centred care in the emergency department and (2) feeling overwhelmed and powerless influenced parents' perceptions of family-centred care. Poor family-centred care worsened parents' sense of powerlessness and reinforced parents' low expectations from physicians. Similarly, low expectations and powerlessness exacerbated poor family-centred care. Interventions are needed to break this cycle and improve family-centredness of care.
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http://dx.doi.org/10.1002/nop2.1304 | DOI Listing |
Eur J Cardiovasc Nurs
January 2025
Department of Oncology and Palliative Care, North Zealand Hospital, Dyrehavevej 29, 3400 Hillerød, Denmark.
Aims: Patients with heart failure (HF) often experience delayed identification of palliative care needs. While communication with HF patients and their caregivers is increasingly stressed, systematic conversations about end-of-life care wishes remain a gap. This study explores a dyad experience of Advance Care Planning (ACP) conversations in an HF outpatient clinic.
View Article and Find Full Text PDFZdr Varst
March 2025
University of Primorska, Faculty of Health Sciences, Polje 42, 6310 Izola, Slovenia.
Background: In Slovenia, the practice of having family present during resuscitation (FPDR) in the clinical setting is still controversial. Therefore, the aim of the study was to explore current public perceptions regarding FPDR in Slovenia and to investigate whether demographic characteristics are related to these perceptions.
Methods: A cross-sectional study was conducted using the FPDR Benefit-Risk Scale (BRS) to collect data from a sample of 618 participants.
Can J Anaesth
January 2025
Department of Medicine, Sinai Health and University of Toronto, Toronto, ON, Canada.
Purpose: The use of patient/family-centred written summaries to supplement verbal information may be useful to improve knowledge and reduce anxiety related to patient transfer from the intensive care unit (ICU) to a hospital ward. We aimed to identify essential elements to include in an ICU-specific patient-oriented discharge summary tool (PODS-ICU).
Methods: We conducted a mixed methods study.
J Adv Nurs
December 2024
School of Health and Welfare, Dalarna University, Falun, Sweden.
Aim: To explore the need for support from family and friends among parents of preterm infants within neonatal intensive care.
Design: A cross-national qualitative study.
Methods: In autumn 2019, 73 parents of preterm infants hospitalised in neonatal intensive care units in Denmark, Finland, Iceland and Sweden were interviewed.
BMC Pregnancy Childbirth
December 2024
Department of Pediatrics, College of Medicine University of Ibadan & University College Hospital, Ibadan, Ibadan, Oyo State, Nigeria.
Background: The postpartum period is associated with an increased risk of maternal mental disorders. The combined effect of having the mother's infant admitted to a tertiary hospital in a low-resource setting and the need to exclusively breastfeed the infant may exaggerate this risk. This study aimed to determine the breastfeeding support provided to mothers whose infants were hospitalised in Nigerian tertiary hospital nurseries and the prevalence of common mental health disorders among this population.
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