Nearly 350,000 lesbian, gay, bisexual, transgender, and queer/questioning (LGBTQ+) adults in the U.S. are currently living with Alzheimer's disease and related dementias (ADRD). Informal caregivers face challenges impacting their ability to access and receive adequate and inclusive care for LGBTQ+ persons living with ADRD. The purpose of this study was to determine the feasibility and acceptability of the Savvy Caregiver Program for caregivers of LGBTQ+ individuals living with ADRD. Data for this secondary analysis come from caregivers ( = 17) who completed 6 sessions of the Savvy program. Caregivers were very satisfied with tailored program activities. Analyses of trends suggest non-significant increases in positive aspects of caregiving and decreases in caregiver burden and depressive symptoms. This is the first known study assessing the feasibility of the Savvy Caregiver Program for caregivers of LGBTQ+ individuals living with ADRD. Future research on the Savvy Caregiver Program for caregivers of LGBTQ+ people living with ADRD is needed.
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9690560 | PMC |
| http://dx.doi.org/10.3390/ijerph192215102 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Examining cultural adaptations of the savvy caregiver program for Korean American caregivers using the framework for reporting adaptations and modifications-enhanced (FRAME).
BMC Geriatr
January 2024
School of Nursing, University of Texas at Austin, Austin, USA.
Article Synopsis
- The FRAME tool is designed to help systematically document and report changes made to evidence-based interventions, specifically focusing on adapting the Savvy Caregiver Program for Korean American dementia caregivers.
- The adaptation process included steps like linguistic adjustments and stakeholder feedback, resulting in 32 specific modifications categorized by FRAME’s eight domains, with a focus on enhancing participant engagement.
- The findings highlighted that the modifications addressed context, content, and training needs evenly, with a strong emphasis on ensuring the changes were appropriate for the intended audience, ultimately aiming to improve the program’s effectiveness and scalability.
The Effect of Tele-Savvy on Sleep Quality and Insomnia in Caregivers of Persons Living with Dementia.
Clin Interv Aging
January 2024
Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.
Article Synopsis
- Sleep disturbances are common among caregivers of people with dementia, and a 7-week online program called Tele-Savvy helps improve caregivers' skills and mental health, potentially benefiting their sleep as well.
- A study analyzed data from a trial comparing Tele-Savvy with two other groups, finding that while there were no immediate effects on sleep quality, caregivers using Tele-Savvy did see significant improvement in insomnia symptoms over time.
- The research suggests that incorporating sleep health education into caregiver support programs could enhance outcomes, addressing the prevalent issue of sleep disturbance in this group.
Defining patient perception of overall well-being and disease activity in the OMERACT Juvenile Idiopathic Arthritis (JIA) core domain set: A report from the JIA working group.
Semin Arthritis Rheum
February 2024
Department of Pediatrics, University of Washington, Seattle, WA, USA; Seattle Children's Hospital, Seattle, Washington, USA.
Objective: The OMERACT Juvenile Idiopathic Arthritis (JIA) Working Group (WG) aimed to reach agreement on a consensus-based definition and description of the core domain related to patient perception of overall well-being and disease activity.
Methods: A committee of patient research partners, clinicians, methodologists, and researchers drafted working definitions and descriptions. The WG conducted two iterative electronic stakeholder surveys to obtain consensus on domain description, definition, and the distinction between patient perception of overall well-being and disease activity.
Changes in Depressive Symptoms of Korean American Dementia Caregivers After Attending the Savvy Caregiver Program: Preliminary Findings with a Pilot Sample.
Clin Gerontol
October 2024
School of Nursing, University of Texas at Austin, Austin, USA.
Article Synopsis
- Language accommodation is essential for providing effective interventions to ethnic minorities with limited English, exemplified by adapting the Savvy Caregiver Program for Korean American dementia caregivers.
- The study involved two groups of 13 Korean American caregivers, where their depressive symptoms were evaluated before, right after, and six months after participating in the program led by Korean-speaking trainers.
- Results showed a significant decrease in depressive symptoms post-intervention that continued at the six-month mark, indicating that delivering programs in participants' native languages can enhance therapeutic benefits for linguistic minorities.
Caregiver Preparedness: A Therapeutic Mechanism and Moderating Factor on Outcomes for the Savvy Caregiver Program.
Clin Gerontol
October 2024
Health Sciences, University of Central Florida, Orlando, USA.
Objectives: Evidence-based interventions for dementia caregivers, such as the Savvy Caregiver Program (SC), seek to address skills and knowledge deficits, caregiver burden, depressive symptoms, and grief. Little research has examined mechanisms by which these interventions accomplish their goals. Caregiver preparedness may be a possible mechanism by which caregiver interventions may confer benefits.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!