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Lived experiences with unmet supportive care needs in pediatric cancer: Perspective of Chinese children and their parents. | LitMetric

AI Article Synopsis

  • The study aimed to identify unmet supportive care needs (SCNs) in Chinese pediatric cancer patients and their parents by exploring their lived experiences through interviews.
  • Data was collected from 32 participants (8 children and 24 parents) across three children's hospitals in China, using a specific analysis method to derive themes about their care needs.
  • Findings highlighted four main themes related to ongoing needs during treatment, family communication, care beyond medical treatment, and a desire for community support, indicating a need for more holistic and integrated care in the healthcare system.

Article Abstract

Objective: Unmet supportive care needs(SCNs) impact pediatric cancer patients and their parents. This study aimed to explore the unmet SCNs from the perspective of Chinese children with cancer and their parents through lived experiences.

Methods: The data of this study was collected using face-to-face semi-structured interviews. The participants were recruited from the oncology units of three children's hospitals in China's cities (Shanghai, Guangzhou, and Hefei) from October 2020 to December 2021. Data were analyzed using Colaizzi's seven-step phenomenological analysis method.

Results: Eight pediatric cancer patients and twenty-four parents were enrolled in the study. Four main themes and eight subthemes (both children's and parent's perspectives) were generated: 1) meeting the ongoing needs along the cancer trajectory (can you tell me what comes next; our needs are growing); 2) communicating with a family focus (they only talk to my parents; let each family member have a voice); 3) providing care beyond the treatment (I am bigger than my body [the children's needs for emotional consolidation and information about their prognosis]; there are things beyond treatment); 4) getting support from the community (I am not a monster [the children were unhappy about being treated differently]; we want to connect with the resources near us).

Conclusion: This study revealed multiple unmet SCNs from the perspective of Chinese children with cancer and their parents. The findings call for comprehensive and in-depth supportive care beyond treatment, integration of the family member voice in pediatric cancer care, and a coordinated pediatric cancer support mechanism in the Chinese healthcare system.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9587401PMC
http://dx.doi.org/10.1016/j.ijnss.2022.09.001DOI Listing

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