Parents raising children with neurodevelopmental disorders (NDD) experience greater family, health, and psychosocial dysfunction due to the compounding nature of children's NDD and disease manifestations. Furthermore, the experiences of fathers and mothers are significantly different, and there is a paucity of consolidated evidence on fathers' experiences. A systematic review and meta-synthesis were conducted using Sandelowski and Barroso's approach. Six electronic databases were searched for relevant articles published between November 2011 and November 2021. Thirty-eight studies were included in this review. An overarching theme "Out of the Shadows, and Into the Sunshine" emerged along with four main themes: (a) "The Illness Is All the Time": An Overwhelming Experience, (b) "Navigating health care and Education Systems," (c) "Strong Alone, Stronger Together," and (d) "My Child Is Different Not Less: A Different Perspective." This meta-synthesis analyzed the facilitators and barriers married fathers of children with NDD faced and suggested a paradigm shift where these fathers are becoming more actively involved in the care of their children. There is a need for family clinicians and therapists and health care, education, and workforce policymakers to collaborate to tackle the current and potential unique barriers faced by fathers of children with NDD.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1111/famp.12817 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Effects of Webcam Access to Preterm Infants in NICUs on Parental Psychological Strain.
Acta Paediatr
January 2025
Chair of Health Services Research, Institute of Medical Sociology, Health Services Research and Rehabilitation Science (IMVR), Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany.
Aim: To investigate whether webcam access for parents of infants in neonatal intensive care units influences parental postpartum depression and stress experiences.
Methods: Parents whose infants had a birth weight below 1500 g and who were admitted to one of the four participating tertiary care hospitals were eligible to participate in the study. The study followed the structure of a multi-centre cross-over pragmatic randomised controlled trial.
Unveiling complexities: Examining the role of traumatic loss in shaping the interplay between black maternal mental health and maternal bonding.
Infant Ment Health J
January 2025
African American Breastfeeding Network, Milwaukee, Wisconsin, USA.
Black women are more likely to experience traumatic birthing events, more likely to experience perinatal depression, and less likely to receive mental health treatment than women of other racial and ethnic backgrounds, and yet largely overlooked in perinatal mental health research. This pilot study seeks to understand how unacceptable racial disparities and adverse perinatal outcomes influence Black maternal depression and maternal bonding by exploring how prior traumatic loss moderates the relationship between depression and bonding during a subsequent pregnancy among a sample of Black mothers. We use survey data collected from 75 Black mothers as part of the Black Fathers, Equal Partners in Promoting Maternal and Infant Health study, a collaboration between the University of Wisconsin Madison and the African American Breastfeeding Network in Milwaukee, Wisconsin, USA.
View Article and Find Full Text PDFParental experience of change following VIPP-SD in families with preschool children with externalizing behavior: A qualitative interview study.
PLoS One
January 2025
Department of Psychology, Centre of Excellence in Early Intervention and Family Studies, University of Copenhagen, Copenhagen, Denmark.
Background: Insensitive parenting and ineffective disciplinary strategies are known risk factors for child externalizing behavior. The Video-feedback Intervention to promote Positive Parenting and Sensitive Discipline (VIPP-SD) has documented effect in promoting sensitive parenting, but little is known on how VIPP-SD is experienced by parents. This study explores how parents of preschool children with externalizing behaviors experience change following VIPP-SD delivered by trained childcare providers.
View Article and Find Full Text PDFEpidemiology of Congenital Hand Anomalies at a Single Center in Mainland China: An Analysis of 1,415 Cases.
J Hand Surg Asian Pac Vol
January 2025
Department of Hand Surgery, Clinical and Research Center for Congenital Hand Deformities and Rare Diseases, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Currently, large-sample epidemiological studies on congenital upper limb differences (CULD) in China are relatively rare. This report presents our centre's experience on the spectrum of diseases and related factors. Information was collected from patients with CULD who underwent surgical treatment at our centre from September 2018 to October 2023.
View Article and Find Full Text PDFManaging Masculinity When Growing up With a Violent Father: A Qualitative Study of Boys' Experiences.
Violence Against Women
January 2025
University of Dundee, Dundee, UK.
A limited qualitative literature explores children's lived experiences of violence; boys' relationships with perpetrator fathers remain largely unexplored. Drawing on interviews with 31 boys, this paper explores the accounts of their relationships with their perpetrator fathers, focusing particularly on the implications of boys' understanding of these relationships for their sense of burgeoning masculinity. Three themes are considered: in (a) relational ambiguity; (b) performing masculinities, managing violence; and (c) envisioning alternative futures and re-visioning the past.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!