The Illness Experience of Long COVID Patients: A Qualitative Study Based on the Online Q&A Community Zhihu.

Int J Environ Res Public Health

School of Journalism and Communication, Huaqiao University, Xiamen 361000, China.

Published: August 2022

AI Article Synopsis

  • Long COVID is a significant public health issue that affects patients' lives, requiring understanding and support for their experiences.
  • The study utilizes grounded theory to analyze patient stories from China's Zhihu APP, revealing the challenges of pain, social stigma, and discrimination faced by long COVID sufferers.
  • Findings suggest that patients use their experiences to motivate personal growth and adaptation, providing insights for policy-makers and healthcare institutions to enhance support and reduce stigma.

Article Abstract

Long COVID is a public health problem that cannot be ignored, and it is critical to understand the long COVID patients' living situations and support this group through their illness narratives. This study is based on grounded theory, and coded the self-produced texts of long COVID patients on the largest online Q&A community in China, Zhihu APP, in an attempt to explore the illness experiences of long COVID patients in China and to understand how they adapt to their illness and reconstruct their lives. The results show that patients face not only the threat of pain from the illness itself, but also social stigma and discrimination. Patients turn their illness experiences into motivation to move forward and reconstruct self and life by 'pushing forward the biographical flows again', 'impression management' and 'self-compassion'. These findings can help policy-makers and medical institutions to provide timely and appropriate policy support and psychological assistance to patients with long COVID, to create a supportive and inclusive social environment, and to reduce discrimination and stigma against them.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9408423PMC
http://dx.doi.org/10.3390/ijerph19169827DOI Listing

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