Patients' Quality of Life is Severely Impacted by Mere Discussions without Realization of the Imperative Centralization of Specialist Surgery and Subsequent After-Care.

Eberhard Schmiedeke Nicole Schwarzer Anke Widenmann-Grolig Dalia Aminoff Graham Slater

Eur J Pediatr Surg

EAT (The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups) and Esophageal Atresia and Tracheo-Esophageal Fistula Support Federation, Nottingham, United Kingdom; ePAG (Patient Advocacy Group) representative in ERN ERNICA (the European Reference Network for Rare Inherited and Congenital Digestive and Gastrointestinal Anomalies).

Published: April 2023

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http://dx.doi.org/10.1055/s-0042-1750052	DOI Listing

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