Purpose: Quality of life research often collects daily information and averages this over a week, producing a summary score. When data are missing, arbitrary rules (such as requiring at least 4/7 observations) are used to determine whether a patient's summary score is created or set to missing. This simulation work aimed to assess the impact of missing data on the estimates produced by summary scores, the psychometric properties of the resulting summary score estimates and the impact on interpretation thresholds.
Methods: Complete longitudinal data were simulated for 1000 samples of 400 patients with different day-to-day variability. Data were deleted from these samples in line with missingness mechanisms to create scenarios with up to six days of missing data. Summary scores were created for complete and missing data scenarios. Summary score estimates, psychometric properties and meaningful change estimates were assessed for missing data scenarios compared to complete data.
Results: In most cases, the 4/7 day rule was supported, but this depended on daily variability. Fewer days of data were sometimes acceptable, but this was also dependent on the proportion of patients with missing data. Tables and figures allow researchers to assess the potential impact of missing data in their own studies.
Conclusions: This work suggests that the missing data rule used to create summary scores impacts on the estimate, measurement properties and interpretation thresholds. Although a general rule of 4/7 days is supported, the way the summary score is derived does not have a uniform impact across psychometric analyses. Recommendations are to use the 4/7 rule, but plan for sensitivity analyses with other missing data rules.
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http://dx.doi.org/10.1007/s11136-022-03198-9 | DOI Listing |
J Autism Dev Disord
December 2024
Department of Communicative Sciences and Disorders, Michigan State University, East Lansing, MI, USA.
Purpose: Looking while listening (LWL) tasks track eye movements while children view images (e.g., a dog and a ball) and hear an auditory prompt (e.
View Article and Find Full Text PDFJ Pers Oriented Res
December 2024
Faculty of Behavioural and Social Sciences, University of Groningen, Groningen, The Netherlands.
Ecological momentary assessment (EMA) of affect, cognition and behavior aims to provide a 'window into a person's daily life'. But what should we look for through this window? In this paper, we compare a statistical perspective, grounded in probability theory, with a dynamic pattern perspective, grounded in complexity theory, on two common phenomena in EMA data: non-stationarity and outlying values. From a statistical perspective, these phenomena are considered nuisances that should be dealt with.
View Article and Find Full Text PDFPolar Biol
December 2024
Department of Geography, Durham University, South Road, Durham, DH1 3LE UK.
Knowledge of the spatial distribution of many polar seabird species is incomplete due to the remoteness of their breeding locations. Here, we compiled a new database of published and unpublished records of all known snow petrel breeding sites. We quantified local environmental conditions at sites by appending indices of climate and substrate, and regional-scale conditions by appending 30 year mean (1992-2021) sea-ice conditions within accessible foraging areas.
View Article and Find Full Text PDFCureus
November 2024
Dentistry, School of Dentistry, Autonomous University "Benito Juarez" of Oaxaca, Oaxaca, MEX.
Background Dental caries is identified as one of the most prevalent chronic pathologies among the pediatric population on a global scale, constituting a public health problem. Within the permanent dentition, the first molars play a fundamental and critical role both in masticatory functionality and in the development of occlusion and the overall oral health of the patient. Previous research has shown that permanent molars tend to show significantly high levels of caries incidence, and a correlation has been detected between the status of the first permanent molars and the overall caries rate.
View Article and Find Full Text PDFHealth Care Transit
February 2024
Department of Psychological and Brain Sciences, Washington University in St. Louis, 1 Brookings Dr., St. Louis, MO 63130, United States.
Background And Aims: Wellbeing research among individuals with Charcot-Marie-Tooth disease (CMT) is limited. The goal of the current study is to characterize the challenges experienced by adults with CMT that researchers may miss by utilizing typical strategies to capture mental health and wellbeing.
Methods: In 2021, we recruited 288 US adults with CMT ( = 60 years, 59% Female, 93% White) to take part in an online survey.
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