Background: Sickle cell disease (SCD) is a lifelong disease for which outcomes may be influenced by patients' self-care knowledge. Therapeutic education (TPE) is a patient-centered teaching instrument based on patient's adaptative processes and needs. TPE was developed in the Paris area by a pediatric health network using interactive face-to-face meetings. The COVID-19 pandemic has impacted the TPE modalities by promoting online training. Our aims were to evaluate the accessibility of patients with SCD to online TPE.
Methods: We compared sessions of TPE before and after the onset of the pandemic: the number of sessions, performed face-to-face or online, individual or in a group. We also recorded the number of participants in each session and their age, school level, and department in France.
Findings: We observed an increase in the total number of trained children, but participation varied greatly according to the geographical area of residence, with a decrease from 22.4% to 4.9% in the proportion of attendees living in the most socio-economically deprived French departments.
Discussion: Online TPE is feasible for patients with SCD but with unequal access according to socio-economic status.
Application To Practice: Access to TPE needs to be improved for patients living in socially disadvantaged areas.
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| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9265241 | PMC |
| http://dx.doi.org/10.1016/j.pedn.2022.06.014 | DOI Listing |
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