Background: Stigma is a common psychological consequence for stroke survivors that aggravates their physical and psychological burden and hinders their rehabilitation. Currently, there are few interventions targeted at the stigma of stroke survivors.
Objectives: This study reports on the development of a self-help cognitive behavioral therapy (CBT) programme driven by a logical model of stigma in stroke survivors, CBT and the advice of multidomain experts.
Methods: A logical model of stigma in stroke survivors was derived from a systematic search of the literature and semistructured interviews with 21 patients to identify factors influencing stigma. The item content of the programme was generated based on this logical model in combination with CBT. A modified Delphi process with an expert panel of multidomain experts was used to evaluate and refine the content of the programme. SPSS 20.0 was used for data analysis.
Results: Seventeen experts accepted the invitation to participate, and all completed two rounds of the Delphi survey. Six sections and 26 items were identified. Consensus was reached among experts that the self-help CBT programme included the following six sections: health education, understanding stigma, cognition change, skills training and self-care, self-acceptance and relapse prevention.
Conclusions: The self-help CBT programme includes health education and psychological education. This study extends the limited body of research on stroke-related stigma interventions, and the next step is to evaluate its efficacy in trials.
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http://dx.doi.org/10.1080/10749357.2022.2083296 | DOI Listing |
Trop Med Infect Dis
November 2024
School of Health Systems & Public Health, University of Pretoria, Pretoria 0028, South Africa.
Sickle cell disease (SCD) is a prevalent inherited blood disorder, particularly affecting populations in Africa. This review examined the disease's burden, its diverse clinical presentations, and the challenges associated with its management in African settings. Africa bears a significant burden of SCD, with prevalence varying across countries and age groups.
View Article and Find Full Text PDFHealthc Technol Lett
December 2024
Department of Intellectual Disability Neuropsychiatry, Research Team Cornwall Partnership NHS Foundation Trust Truro UK.
Communication can be a challenge for a significant minority of the population. Those with intellectual disability, autism, or Stroke survivors can encounter significant problems and stigma in their communication abilities leading to worse health and social outcomes. SpeechMatch (https://www.
View Article and Find Full Text PDFBMC Public Health
December 2024
Department of Women's and Children's Health, Uppsala University, Dag Hammarskjölds väg 14B, Uppsala, Sweden.
Background: Stroke prevalence is one of the most pressing issues in many sub-Saharan African countries. Stroke survivors often face disabilities, mental health problems, and experience stigma. Research on post-stroke experiences and interventions is limited, particularly in low and middle-income countries, including Ghana.
View Article and Find Full Text PDFJ Stroke Cerebrovasc Dis
December 2024
College of Nursing, Chengdu University of Traditional Chinese Medicine, Chengdu, PR China. Electronic address:
Neurol Clin Pract
February 2025
University of Southern California (MD, CW), Los Angeles; Université de Montréal (MD); CRIR-Institut universitaire sur la réadaptation en déficience physique de Montréal (IURDPM) (MD), CIUSSS du Centre-Sud-de-l'Île-de-Montréal, Quebec, Canada; Cyprus University of Technology (MC), Limassol, Cyprus; University of Fribourg (MC), Switzerland; Singapore Institute of Technology (LKK); Singapore General Hospital (ST); University Hospital Centre Zagreb (DB), Croatia; University of Virginia (SC); Richmond VA Medical Center (SC); Assiut University (AN), Egypt; Antwerp University Hospital (LY), Belgium; University of Tasmania (DA), Hobart (TAS); The Florey Institute of Neuroscience and Mental Health (JB), Heidelberg, Victoria, Australia; and The KITE Research Institute- Toronto Rehabilitation Institute (UG), University Health Network, Ontario, Canada.
Background And Objectives: Stroke in young adults has a lifelong impact on activities of daily life, including driving, leisure, and community-based activities; social participation; and reduced productivity. The needs of young people with stroke (YPwS) are likely to vary across different countries, and the development of age-adapted information and interventions is therefore critical in addressing those needs. This study aims to (1) identify the unmet needs of people with stroke aged 18 to 55 years across countries with varied income levels and cultural backgrounds and (2) determine their preferred means to access knowledge and information about stroke in the young.
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