Background: Paediatric cancers are rare and more complex than adult cancers. Consequently, treatment for paediatric cancers is complex, requiring absolute precision and accuracy in delivering the prescribed dose. For radiotherapists, the complexity of performing paediatric radiotherapy treatment is augmented by its rarity, time and pressure constraints, the patient's lack of cooperation, anxiety and emotional challenges. These multiple challenges may affect the quality of patient care if they are not recognised and reduced. Therefore, this study explored radiotherapists experience of treating paediatric patients.
Objective: The purpose of this study was to explore and describe the lived experiences of radiotherapists treating paediatric patients.
Methods: This qualitative phenomenological study purposively sampled qualified radiotherapists involved in paediatric treatment planning and delivery in Gauteng, South Africa. Data were collected through 17 individual, in-depth interviews and underwent thematic analysis.
Results: Thematic analysis identified the emotional context in which radiotherapists work when treating paediatric patients and how radiotherapists' familiarity affects their experience of treating paediatric patients. The closeness of contact with the paediatric patient, parents and family dimension impacted participants positively and negatively.
Conclusion: The study confirmed that radiotherapists treating paediatric patients work within a highly intense emotional context. The importance of gaining familiarity and experience in paediatric radiotherapy to enhance competency, was identified. Radiotherapist's experienced both positive and negative implications due to their close contact with the paediatric patient, parents and family dimension. The necessity to advance the practical infrastructural areas and strive for enhanced professionalism to improve paediatric radiotherapy was thus emphasised.
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http://dx.doi.org/10.1016/j.jmir.2022.05.002 | DOI Listing |
Indian J Pediatr
December 2024
Department of Pediatrics, All India Institute of Medical Sciences, New Delhi, India.
Genet Med
December 2024
Division of Genetics and Genomics, Boston Children's Hospital, Boston, MA; The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, MA; Harvard Medical School, Boston, MA.
Purpose: Genomic sequencing of newborns (NBSeq) can initiate disease surveillance and therapy for children, and may identify at-risk relatives through reverse cascade testing. We explored genetic risk communication and reverse cascade testing among families of newborns who underwent exome sequencing and had a risk for autosomal dominant disease identified.
Methods: We conducted semi-structured interviews with parents of newborns enrolled in the BabySeq Project who had a pathogenic or likely-pathogenic (P/LP) variant associated with an autosomal dominant (AD) childhood- and/or adult-onset disease returned.
Clin Exp Ophthalmol
December 2024
King Hussein Cancer Center, Amman, Jordan.
Background: To evaluate the clinical presentation, pathological features and outcomes of retinoblastoma based on the race of origin in a global cohort of patients.
Methods: Retrospective collaborative study of 1426 patients who underwent primary enucleation for retinoblastoma.
Results: Patients were grouped into Caucasians (n = 231, 16%), Asians (n = 841, 59%), Hispanics (n = 226, 16%), Arabs (n = 96, 7%) and Others (Africans, African Americans, Indigenous Australians; n = 32, 2%) cohorts.
Zh Nevrol Psikhiatr Im S S Korsakova
December 2024
GUTA-CLINIC LLC, Moscow, Russia.
Objective: Evaluation of the safety and effectiveness of Relatox, botulinum toxin type A in patients with focal spasticity (FS) of the upper limb as a result of a cerebrovascular accident (CVA) or traumatic brain injury (TBI).
Material And Methods: A multicenter, prospective, single-blinded, randomized, comparative clinical study included 210 patients of both sexes aged 18-75 years after moderate to severe TBI and CVA in seven sites in the Russian Federation. The patients were randomized into two groups.
Med Sci Monit
December 2024
Department of Neurosurgery, China Medical University Hospital, Taichung, Taiwan.
BACKGROUND Ventriculoperitoneal (VP) shunt surgery is a widely used procedure for managing hydrocephalus; however, postoperative infections remain a serious complication, increasing morbidity and mortality. Known risk factors include prior surgeries, steroid use, and concurrent procedures. However, the role of liver cirrhosis, a condition that compromises immune function and predisposes patients to infections, has not been fully investigated in the context of neurosurgery.
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