The use of eHealth and healthcare services are becoming increasingly common across networks and ecosystems. Identifying the quality and health impact of these services is a big problem that in many cases it is difficult determine. Health ecosystems are seldom designed with privacy and trust in mind, and the service user has almost no way of knowing how much trust to place in the service provider and other stakeholders using his or her personal health information (PHI). In addition, the service user cannot rely on privacy laws, and the ecosystem is not a trustworthy system. This demonstrates that, in real life, the user does not have significant privacy. Therefore, before starting to use eHealth services and subsequently disclosing personal health information (PHI), the user would benefit from tools to measure the level of privacy and trust the ecosystem can offer. For this purpose, the authors developed a solution that enables the service user to calculate a Merit of Service (Fuzzy attractiveness rating (FAR)) for the service provider and for the network where PHI is processed. A conceptual model for an eHealth ecosystem was developed. With the help of heuristic methods and system and literature analysis, a novel proposal to identify trust and privacy attributes focused on eHealth was developed. The FAR value is a combination of the service network's privacy and trust features, and the expected health impact of the service. The computational Fuzzy linguistic method was used to calculate the FAR. For user friendliness, the Fuzzy value of Merit was transformed into a linguistic Fuzzy label. Finally, an illustrative example of FAR calculation is presented.
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http://dx.doi.org/10.3390/jpm12050657 | DOI Listing |
J Commun Healthc
January 2025
Venditti Consulting, LLC, Westport, CT, United States.
By addressing communication gaps, the integration of AI tools in healthcare has a greater ability to improve decision-making and to empower patients with more control over their health. Current systems for navigating healthcare - such as finding providers or understanding costs - are fragmented and cumbersome, often leaving patients frustrated and uninformed. An AI Healthcare Assistant App, leveraging advances in health IT interoperability, price transparency, and user-centred design, could simplify these processes.
View Article and Find Full Text PDFPLoS One
January 2025
School of Nursing and Midwifery, University of Rwanda, Kigali, Rwanda.
Introduction: The World Health Organization (WHO) has emphasized the importance of ensuring respectful and dignified childbirth experiences. However, many countries, including Rwanda, have documented negative experiences during childbirth. Identifying best practices can help uncover sustainable solutions for resource-limited settings rather than focusing solely on the challenges and negative aspects.
View Article and Find Full Text PDFIntroduction: Sharing patient health information and biospecimens can improve health outcomes and accelerate breakthroughs in medical research. But patients generally lack understanding of how their clinical data and biospecimens are used or commercialized for research. In this mixed methods project, we assessed the impact of communication materials on patient understanding, attitudes, and perceptions.
View Article and Find Full Text PDFLearn Health Syst
January 2025
Bioethics Research Center, Division of General Medical Sciences, Department of Medicine Washington University School of Medicine St. Louis Missouri USA.
Objectives: Patient engagement is critical for the effective development and use of artificial intelligence (AI)-enabled tools in learning health systems (LHSs). We adapted a previously validated measure from pediatrics to assess adults' openness and concerns about the use of AI in their healthcare.
Study Design: Cross-sectional survey.
J Med Educ Curric Dev
January 2025
Department of Health Policy and Management, Columbia University Mailman School of Public Health, New York, NY, USA.
Objectives: Instilling the principles of ethical and responsible medical research is critical for educating the next generation of clinical researchers. We developed a responsible conduct of research (RCR) workshop and associated curriculum for undergraduate trainees in a quantitative clinical research program.
Methods: Topics in this 7-module RCR workshop are relevant to undergraduate trainees in quantitative fields, many of whom are learning about these concepts for the first time.
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