Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership.

BMJ Open

Medical Humanities, University Medical Center, Utrecht University, Utrecht, The Netherlands.

Published: May 2022

AI Article Synopsis

  • The James Lind Alliance (JLA) helps ensure that health and care priorities reflect the actual needs of patients, caregivers, and clinicians through a collaborative approach called a Priority Setting Partnership (PSP).
  • Having effective strategies for communication and engagement in a PSP fosters trust, encourages innovation, and ensures everyone is included equally.
  • The authors highlight eight key lessons learned from their experiences with JLA PSP, focusing on the importance of patient involvement and collaborative research.

Article Abstract

Objective: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda's with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda.

Key Arguments: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion.

Conclusion: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9125715PMC
http://dx.doi.org/10.1136/bmjopen-2021-059006DOI Listing

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