Observational research benefits from a rich methodological foundation of registry development and operation published in international and national guidelines. Metadata management is an essential part of registry implementation based on concepts of data elements and value sets. The metadata from six German registries revealed vastly divergent interpretations of the concept of data elements. The different perspectives of research questions, data acquisition and data storage were all represented in the registries' catalogs of data elements. Consequently, the whole life cycle of a registry needs to be accompanied by a catalog of data elements, which has to be continuously adapted to the changing perspectives. A standard for the representation of those metadata is still missing. The FAIR Guiding Principles introduce important methodological requirements, but the tools for their fulfillment in respect to the management of metadata are still in its infancy.
Download full-text PDF |
Source |
---|---|
http://dx.doi.org/10.3233/SHTI220432 | DOI Listing |
J Pediatr Urol
November 2024
School of Medicine and Public Health, The University of Newcastle, NSW, Australia; Urology Unit, Department of Surgery, The Children's Hospital at Westmead, NSW, Australia; Faculty of Medicine, The University of Sydney, NSW, Australia. Electronic address:
Background: Three major parties are involved in the hypospadias treatment journey - the patient, their parents/carers, and the surgeon. There is a strong trend towards involving all three, where possible, in deriving evidence around the care pathways. Currently, there are little data available on surgeons' perspectives of distal hypospadias care.
View Article and Find Full Text PDFAnimal
November 2024
Jiangxi Key Laboratory of Bioprocess Engineering, College of Life Sciences, Jiangxi Science and Technology Normal University, Nanchang 330013, China. Electronic address:
The domestication of ducks represents a pivotal evolutionary shift from the unguided propagation of wild species to deliberate human-mediated selection, culminating in distinct behavioural, morphological, and physiological traits that differentiate domesticated ducks from their wild counterparts. This transition has yielded breeds with traits fine-tuned to specific economic roles, such as egg production, meat yield, or dual-purpose functionality. Duck domestication plays a significant role in poultry production globally, meeting the growing demand for eggs and meat in various regions.
View Article and Find Full Text PDFWater Res
December 2024
State Key Laboratory of Environmental Criteria and Risk Assessment, and State Environmental Protection Key Laboratory of Simulation and Control of Groundwater Pollution, Chinese Research Academy of Environmental Sciences, Beijing 100012, China.
Dissolved organic matter (DOM) represents one of the most active elements in aquatic systems, whose fraction is engaged in chemical and biological reactions. However, fluorescence, molecular diversity and variations of DOM in groundwater systems with the alteration of surface water recharge remain unclear. Herein, Excitation-emission matrix (EEM) fluorescence spectroscopy and Fourier transform ion cyclotron resonance mass spectrometry (FT-ICR MS) combined with principal component coefficients, parallel factor analyses (PARAFAC) with two‒dimensional correlation spectroscopy (2D-COS) were applied in this study.
View Article and Find Full Text PDFJ Environ Manage
January 2025
Shaanxi Atmospheric Observation Technical Support Center, Xi'an, 710000, China. Electronic address:
Accurate meteorological observation data is of great importance to human production activities. Meteorological observation systems have been advancing toward automation, intelligence, and informatization. Yet, instrumental malfunctions and unstable sensor node resources could cause significant deviations of data from the actual characteristics it should reflect.
View Article and Find Full Text PDFJ Environ Manage
January 2025
School of Public Administration, Central South University, Changsha, Hunan, China. Electronic address:
Much of the existing literature on environmental performance has focused on human capital and intangible assets such as environmental policies and strategies, the role of intellectual capital has largely been overlooked. This study aims to investigate the impact of intellectual capital on environmental performance at the firm level, specifically in the electrical and electronics (E&E) sector in China. By considering human, relational, and structural capital as integral elements of intellectual capital, we assess their direct influence on environmental performance and explore how these components interact with other factors in driving environmental outcomes.
View Article and Find Full Text PDFEnter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!