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http://dx.doi.org/10.1542/peds.2022-056737 | DOI Listing |
Background: Alzheimer's disease and related dementias (ADRD) place substantial burdens on care partners. The need to better support ADRD care partners through policy actions is high, specifically to enhance existing services and reduce inequities experienced by historically underserved communities.
Method: Between July and September 2023, a modified Delphi process was employed to determine policy and program priorities for supporting Oregon-based care partners.
Alzheimers Dement
December 2024
University of British Columbia, Vancouver, BC, Canada.
Background: Social media provides dementia prevention researchers with additional opportunities to engage diverse audiences, including healthy individuals who unaware of their eligibility to take part in dementia-related research. However, practical social media guidance that reflects the values and priorities of potential participants is needed. To address this gap, we sought to create consensus recommendations with research professionals and community experts.
View Article and Find Full Text PDFAlzheimers Dement
December 2024
Center for Cognitive Disorders, Technical University of Munich, School of Medicine and Health, Klinikum rechts der Isar, Munich, Bavaria, Germany.
Background: The increasing number of people living with dementia and its burden on families and systems particularly in low- andmiddle-income countries require comprehensive and ecient post-diagnostic management. This study aimed to explore the acceptability and ecacy of a multi-professional case management and psychoeducation model (North Macedonia Interprofessional Dementia Care, or NOMAD) delivered bymobile teams for people with dementia and their caregivers in North Macedonia.
Method: We conducted a two-arm randomized controlled trial comparing the intervention with treatment as usual.
Alzheimers Dement
December 2024
The University of Sydney, Camperdown, NSW, Australia.
Background: People with dementia and their care givers are provided limited guidance in medication management, potentially contributing to medication-related harm. Importantly, there are no resources that provide comprehensive medication management guidance across care settings. To ensure that resources are co-designed, genuine involvement of people with dementia, their care givers and the community in identifying the priorities for medication management guidance resources is needed.
View Article and Find Full Text PDFAlzheimers Dement
December 2024
University College London, London, London, United Kingdom.
Background: People with dementia have complex palliative care needs including psycho-social, physical and spiritual; however, they are often unmet. It is important to empower people with dementia, family caregivers and professionals to work together to better assess and monitor ongoing needs. This study aimed to co-design and test the feasibility of an integrated model of palliative dementia care to support holistic assessment and decision making for care in the community and care homes (assisted living facilities).
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