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Conceptual and empirical item hierarchies of person-centred outpatient care.
Heliyon
January 2025
The PRO-CARE Group, Faculty of Health Sciences, Kristianstad University, Kristianstad, Sweden.
Introduction: The Person-Centred Care instrument for outpatient care (PCCoc) is a 36-item patient-reported experience measure with 4 ordered response categories, that aims to capture the degree of perceived person-centred care (PCC) from a patient perspective among persons with long-term conditions. The PCCoc is based on a framework that conceptualises outpatient PCC from lower to higher levels of perceived PCC, from personalisation via shared decision-making to empowerment, where 35 of the PCCoc items are a part of the framework's hierarchy.
Aim: To investigate to what extent empirical item responses are consistent with the hierarchical PCCoc conceptual framework among persons with long-term conditions in outpatient care.
"This takes a toll on me too"-a qualitative interview study on experiences of informal caregivers to patients who have had aneurysmal subarachnoid haemorrhage.
Disabil Rehabil
December 2024
Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
Purpose: To describe life as an informal caregiver to someone affected by an aneurysmal subarachnoid haemorrhage (aSAH) in the first year after the event.
Methods: A qualitative descriptive study in which informal caregivers ( = 16) to patients treated for aSAH were interviewed one year after the event. An interview guide was used and an inductive, conventional content analysis was applied.
Psychological resilience in patients with primary Sjögren's syndrome: effect of involvement of major salivary and lacrimal glands.
Eur J Oral Sci
December 2024
Faculty of Dentistry, Istanbul Okan University, Istanbul, Turkey.
Article Synopsis
- * It included 116 patients with pSS, assessing salivary flow rates, eye dryness, and psychological health using various patient-reported outcome measures like the Brief Resilience Scale (BRS) and the Hospital Anxiety and Depression Scale (HADS).
- * Findings indicated lower resilience scores in patients experiencing recurrent parotitis, and those with both dry mouth and dry eyes, suggesting these factors, along with anxiety and depression, may negatively influence psychological resilience in pSS patients.
Patient Initiated Follow-Up (PIFU): how can rheumatology departments start to reap the benefits? A consensus document.
Rheumatol Adv Pract
August 2024
Department of Rheumatology, Derriford Hospital, Plymouth, UK.
Article Synopsis
- Patient Initiated Follow-Up (PIFU) is being adopted in the NHS to improve outpatient care by enabling patients to manage their follow-ups, especially in high-demand areas like rheumatology.
- PIFU has shown similar safety and results compared to traditional methods, while enhancing personalized care and efficiency, potentially reducing patient backlogs.
- Successful implementation requires careful patient selection, education for both patients and staff, clear operational guidelines, and effective use of digital tools like ePROMs for patient monitoring.
Transition Guide Dissemination to Foster Patient-Care Team Conversations: A Childhood Arthritis Rheumatology Research Alliance Transition Learning Collaborative Pilot Implementation Study.
ACR Open Rheumatol
January 2025
University of California San Francisco, San Francisco, California.
Objective: Uptake of evidence-informed health care transition processes among pediatric rheumatologists is low despite poor outcomes of transition from pediatric to adult care. We piloted a learning collaborative model to implement transition guides. We dually assessed implementation outcomes and changes in reported patient-care team discussions about transition.
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