The primary task of ethics consultants is to work with patients-and sometimes also their families-to discern and then meet patients' and families' needs and wants to the extent possible. That is primarily a cognitive endeavor. Yet the feelings of patients and ethics consultants may determine what they can work together to accomplish. This article considers their feelings. It looks at sources of distrust and their hoped-for resolution, specific means to enhance patients' decision making in their relationship with ethics consultants, and a new, highly different approach that may enhance their relationships more than most commonly used ways of relating.
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J Empir Res Hum Res Ethics
January 2025
CTC Clinical Trial Consultants AB, Uppsala, Sweden.
This study examined the characteristics, experiences, motivations, and preferences of healthy volunteers participating in Phase I clinical trials in Sweden. A descriptive, cross-sectional survey was conducted among 135 healthy volunteers who had participated in at least one Phase I clinical trial from 2021 to 2024. Volunteers considered trial personnel, financial compensation, and regulatory review and approval as highly important factors in their decision to participate.
View Article and Find Full Text PDFLay views in Southern France of the acceptability of refusing to provide treatment because of alleged futility.
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Ethics and Work Research Unit, Institute of Advanced Studies (EPHE), Paris, France.
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Institut supérieur de philosophie, UCLouvain, Louvain-la-Neuve, Belgium.
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