AI Article Synopsis

  • Dermatologists are skilled in treating complex skin conditions but may lack expertise in addressing the psychosocial aspects of care for pediatric patients with epidermolysis bullosa (EB).
  • The article highlights the importance of recognizing various types of trauma—social, psychological, and medical—that children with EB may face.
  • It provides recommendations for trauma-informed care and emphasizes the need for a patient-centered approach in managing anxiety and trauma in these patients, involving both dermatologists and multidisciplinary teams.

Article Abstract

Although dermatologists are well-trained in the medical management of complex skin disease, psychosocial care often exceeds a dermatologist's skillset. We aim to elucidate major factors to consider in the comprehensive management of pediatric epidermolysis bullosa (EB) and provide care recommendations. There are many types of trauma a child with EB may experience, from social to psychological to medical. We include information on trauma-informed care and advice for the dermatologist and multidisciplinary team regarding patient-centered and family-centered approaches to recognizing and reducing anxiety and trauma in EB patients.

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Source
http://dx.doi.org/10.1111/pde.14951DOI Listing

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