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Background: The use of visual methods in qualitative evidence synthesis (QES) adds a valuable dimension to the synthesis process by enhancing understanding and knowledge generation. Visual methods are currently underused and underreported in QES.
Methods: This is the first study to describe accessible visual methods that support various stages of QES and to show the application of visual methods to a Cochrane QES of 43 studies using meta-ethnography and systematic review methods.
Multi-stakeholder sessions on major innovation topics in rare disease clinical trials.
Orphanet J Rare Dis
December 2024
Institut des Maladies Gènètiques Imagine- Necker Enfants malades Hospital, 24 Boulevard du Montparnasse, 75015, Paris, France.
Background: The European Joint Programme on Rare Diseases aims to enhance the rare diseases research ecosystem by bringing together stakeholders such as research funders, institutions and patient organizations. Work Package 20 focuses on the validation, use and development of innovative methodologies for rare disease clinical trials. This paper reports on the outcomes of a retreat held in April 2023, where areas for innovation and educational needs in rare disease clinical trials were discussed in multi-stakeholder sessions.
View Article and Find Full Text PDFRepresenting the Needs of Rural Caregivers of People Living With Alzheimer's Disease and Related Dementias Through User Personas.
Innov Aging
October 2024
Department of Health & Wellness Design, Indiana University School of Public Health, Bloomington, Indiana, USA.
Background And Objectives: Rural caregivers of people living with Alzheimer's disease and related dementias (ADRD) face unique caregiving challenges. Current interventions do not address many of the systemic barriers experienced by rural ADRD caregivers, including barriers related to geography, healthcare services access, and financial insecurity. The objective of this study was to gain a deeper understanding of rural ADRD caregivers' needs, strengths, and strategies in obtaining caregiving support, and to represent these attributes in the form of personas that can be used to design interventions for rural ADRD caregivers.
View Article and Find Full Text PDFDevelopment of Educational Whiteboard Videos for Head Start Teachers on How to Implement Food-based Learning in the Preschool Classroom.
J Nutr Educ Behav
January 2025
Department of Agricultural and Human Sciences, North Carolina State Extension, North Carolina State University, Raleigh, NC. Electronic address:
Exploring Consumer Preferences for Pharmacy Provision of Mifepristone in the Human-centered Design Discovery Phase.
Womens Health Issues
November 2024
Ci3, Department of Obstetrics and Gynecology, University of Chicago, Chicago, Illinois.
Article Synopsis
- The study aimed to understand consumer preferences for obtaining mifepristone for medication abortion through a human-centered design approach involving workshops with participants who have experience with abortion care.
- Participants provided insights on key topics such as logistics, privacy, cost, pharmacist refusal, and follow-up care, highlighting their needs for specific information from different providers.
- The findings suggest a need for further research that incorporates personal experiences and storytelling methods to enhance the understanding of consumer experiences in accessing medication abortion services.
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