Objective: To determine the burden on the caregivers of dementia patients and the factors affecting the perception of it.
Methods: The current systematic review was done in Turkey and comprised a search between October 2019 and March 2020 on Turkish and English indices, including the Turkish Academic Network and Information Center database, Web of Science, PubMed, Education Resources Information Centre, Medline, SocINDEX, Cumulative Index to Nursing and Allied Health Literature, PsycINFO, Google Scholar, Ulusal Tez Merkezi, Dergipark and Turk Medline. The key words used were 'Demans', 'alzheimer', 'bakım verenler', 'hastalık yükü', 'dementia', 'alzheimer's', 'caregivers' and 'burden of illness'. Studies included were those having been conducted from 2010 to 2019 and which used the Personal Information Form, the Zarit Caregiver Burden Scale and the Caregiver Burden Inventory.
Results: Of the 4,182 studies initially found, 502(12%) were accessed using Turkish key words, and 3,680(88%) using English key words. Overall, 16(0.38%) studies met the inclusion criteria and were reviewed. There were 2,060 caregivers and 414 patients in these studies. A high number of variables affected caregiver burden. Patient-related variables reported in multiple studies included time spent on caregiving, dementia stage, patient's age and level of patient's dependence.
Conclusions: The most frequently reported caregiver-related variables which increased caregiver burden were being female, younger age, being unemployed, older age, lower education level.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.47391/JPMA.2168 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Behind the scenes of palliative care: Qualitative study with oncology family caregivers.
Eur J Oncol Nurs
January 2025
Faculty of Psychology and Education Sciences, Centre for Social Studies (CES), University of Coimbra, USA.
Purpose: Long-term caregiving tasks can be exhausting for family caregivers, resulting in high psychological morbidity. The study aims to explore the experiences, challenges, and strengths of family caregivers providing care for cancer patients in palliative care, in-patient or at home.
Method: Nine caregivers were included, predominantly women aged 34 to 70, from various regions of Portugal.
The relationship between caregiver burden and life satisfaction in caregivers of individuals with epilepsy: An example in eastern Turkey.
Epilepsy Behav
January 2025
Dursun Odabaş Medical Center, Van Yüzüncü Yıl University, Van, Turkey. Electronic address:
Objective: This study was conducted to investigate the relationship between caregiver burden and life satisfaction among caregivers of individuals with epilepsy.
Methods: This descriptive and cross-sectional study was conducted with 210 caregivers at a university hospital located in Van, a province in eastern Türkiye. A personal information form prepared by the researcher based on literature, along with The Caregiver Burden Scale and Life Satisfaction Scale, was used to collect data.
Family Connections: The Impact of an Education Program for Carers of Individuals With Borderline Personality Disorder in Italian Mental Health Services.
Fam Process
March 2025
Unit of Psychiatry, IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Brescia, Italy.
Borderline personality disorder (BPD) has a strong impact not only on patients' lives but also on their families. The presence of an invalidating environment is one of the key factors in the etiology of BPD. This study evaluated the impact of the Family connections (FC) program on burden, grief, and other clinical variables in 202 caregivers and identified the profiles of participants who improved/deteriorated their levels of burden and grief.
View Article and Find Full Text PDFIndividual and system-level determinants of caregivers' quality of life among inner-city preschool children with asthma.
J Asthma
January 2025
Division of Pulmonary and Critical Care Medicine, Department of Medicine, Johns Hopkins School of Medicine, Baltimore, Maryland, USA.
Caregivers of children with asthma can become overwhelmed by the burden of care provision. Guided by the socioecological framework, we examined individual and system-level factors associated with caregiver health-related quality of life (HRQoL) among preschool children (aged two to six years) enrolled in a multilevel home- and school-based asthma educational intervention in Baltimore, Maryland. Primary outcome was caregiver HRQoL measured at baseline and six months.
View Article and Find Full Text PDFModeling Pathways by which the Caregiver TLC Psychoeducational Program Impacts Psychological Health of Caregivers.
Gerontologist
January 2025
Photozig, Inc., Moffett Field, CA, USA.
Background And Objectives: The study seeks to elucidate the pathways by which the Caregiver TLC psycho-educational program impacts the psychological health of caregivers by examining the degree to which changes in self-efficacy, personal gains, and emotional support mediate the changes on perceived depression, anxiety and burden.
Research Design And Methods: Using pre-post data from the Caregiver TLC randomized controlled trial (n = 81) for each outcome and mediator pair, a series of multiple regression models were executed to test the degree to which the program's total effects on changes in depression, burden and anxiety from baseline to post-intervention are due to changes in each mediator variable from pre- and post-intervention assessments. Caregivers were primarily female (85%), White (62 %), Black (38%), with a median age of 62 and household income of $75,000+.
Want AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!