AI Article Synopsis
- The study explores the family experience of pre-transplant evaluation for children, filling a gap in existing research that mostly focuses on adult recipients.
- Key themes identified include the overwhelming emotional nature of the evaluation, the influence of caregivers' previous experiences on their perceptions, and common frustrations regarding communication among medical teams.
- The findings suggest that transplant centers could improve the process by enhancing information delivery and addressing communication issues.
Article Abstract
Background: Pre-transplant evaluation is mandated by Centers for Medicare and Medicaid Services, but there is wide institutional variation in implementation, and the family experience of the process is incompletely understood. Current literature largely focuses on adult transplant recipients.
Methods: This qualitative study begins to fill the knowledge gap about family experience of the pre-transplant evaluation for children through interviews with caregivers at a large pediatric transplant center.
Results: Prominent themes heard from caregivers include (1) the pre-transplant evaluation is overwhelming and emotional, (2) prior experiences and background knowledge frame the evaluation experience, and (3) frustration with communication among teams is common.
Conclusions: These findings are relevant to efforts by transplant centers to optimize information delivery, minimize concrete barriers, and address healthcare systems issues. A higher resolution version of the Graphical abstract is available as Supplementary information.
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|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8727489 | PMC |
| http://dx.doi.org/10.1007/s00467-021-05354-8 | DOI Listing |
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