AI Article Synopsis

  • Children with eosinophilic esophagitis (EoE) experience significant stress, and this study evaluated the Cellie Coping Kit as a potential resource for families to manage these challenges.
  • The study found that over 90% of participants found the intervention easy to use and would recommend it to others, with more than 70% actively using the kit.
  • While families reported learning new coping strategies, no significant changes were observed in coping or quality of life, indicating the need for further research to enhance the intervention's effectiveness.

Article Abstract

Children with eosinophilic esophagitis (EoE) are faced with ongoing treatments that can impact their wellbeing. There are no evidence-based resources that families can implement independently to cope with EoE-related stressors. This study aimed to examine acceptability, feasibility, and preliminary outcomes of the newly developed Cellie Coping Kit for Children with EoE intervention. Forty child-caregiver dyads completed a baseline assessment (T1) and initiated the intervention; 30 (75%) child participants and 33 (82.5%) caregivers were retained to follow-up (T2). Of those who completed the T2 assessment, most reported that the intervention was easy to use (>90%) and would recommend the intervention to others (>90%). The intervention was feasible: >70% used the kit, and most indicated they would use it again (>75%). More than half of families reported learning new information and/or coping strategies. No statistically significant changes were identified in comparing T1 and T2 coping and health-related quality of life. These findings suggest that the Cellie Coping Kit for Children with EoE is a promising intervention in that it was well accepted, feasible, and helped many families learn novel strategies on how to manage EoE challenges. Future research should examine how to strengthen the intervention to achieve longer-term targeted outcomes.

Download full-text PDF

Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11007661PMC
http://dx.doi.org/10.1177/13674935211064126DOI Listing

Publication Analysis

Top Keywords

cellie coping
12
coping kit
12
kit children
12
children eosinophilic
8
eosinophilic esophagitis
8
preliminary outcomes
8
children eoe
8
intervention
7
kit
4
children
4

Similar Publications

Article Synopsis
  • Children with eosinophilic esophagitis (EoE) experience significant stress, and this study evaluated the Cellie Coping Kit as a potential resource for families to manage these challenges.
  • The study found that over 90% of participants found the intervention easy to use and would recommend it to others, with more than 70% actively using the kit.
  • While families reported learning new coping strategies, no significant changes were observed in coping or quality of life, indicating the need for further research to enhance the intervention's effectiveness.
View Article and Find Full Text PDF

Background: Injury is one of the most prevalent potentially emotionally traumatic events that children experience and can lead to persistent impaired physical and emotional health. There is a need for interventions that promote full physical and emotional recovery and that can be easily accessed by all injured children. Based on research evidence regarding post-injury recovery, we created the Cellie Coping Kit for Children with Injury intervention to target key mechanisms of action and refined the intervention based on feedback from children, families, and experts in the field.

View Article and Find Full Text PDF

Purpose: Physical and psychological challenges can arise from paediatric injury, which can impact child health outcomes. Evidence-based resources to promote recovery are limited. The low cost, portable Cellie Coping Kit for Children with Injury provides evidence-based strategies to help children manage injury-related challenges.

View Article and Find Full Text PDF

The Cellie Coping Kit for Sickle Cell Disease: Initial acceptability and feasibility.

Clin Pract Pediatr Psychol

December 2014

Division of Oncology, The Children's Hospital of Philadelphia; Department of Pediatrics, University of Pennsylvania.

Sickle Cell Disease (SCD) and its treatment can place physical and psychosocial strain on children and their families, underlining the need for behavioral and emotional support. Much of SCD is often managed at home, which may prevent children from obtaining supportive services from medical and psychosocial teams. Children with SCD report a restricted number of coping strategies specific to managing SCD and may benefit from education on adaptive coping.

View Article and Find Full Text PDF

Acceptability and feasibility of family use of The Cellie Cancer Coping Kit.

Support Care Cancer

December 2012

Center for Injury Research & Prevention, The Children's Hospital of Philadelphia, 3535 Market, Suite 1150, Philadelphia, PA 19104, USA.

Purpose: This study aims to examine the acceptability and feasibility of child and parent use of The Cellie Cancer Coping Kit (Cellie Kit). The Cellie kit is designed to promote coping and decrease distress in children undergoing pediatric cancer treatment. It includes a plush toy, coping cards, and book for caregivers.

View Article and Find Full Text PDF

Want AI Summaries of new PubMed Abstracts delivered to your In-box?

Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!

A PHP Error was encountered

Severity: Notice

Message: fwrite(): Write of 34 bytes failed with errno=28 No space left on device

Filename: drivers/Session_files_driver.php

Line Number: 272

Backtrace:

A PHP Error was encountered

Severity: Warning

Message: session_write_close(): Failed to write session data using user defined save handler. (session.save_path: /var/lib/php/sessions)

Filename: Unknown

Line Number: 0

Backtrace: