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http://dx.doi.org/10.46747/cfp.6712947 | DOI Listing |
Healthc Manage Forum
September 2024
Simon Fraser University, Burnaby, British Columbia, Canada.
Res Involv Engagem
August 2024
South London and Maudsley NHS Foundation Trust, London, UK.
Background: When creating resources, such as psychoeducational materials, for children and families, it is essential to consult all stakeholders. By asking service users what they would find helpful, we can ensure that psychoeducational materials developed are directly addressing a need. This report summarises the process of co-developing a psychoeducational video with young people for the adults in their lives.
View Article and Find Full Text PDFIntroduction: Patient engagement and integrated knowledge translation (iKT) processes improve health outcomes and care experiences through meaningful partnerships in consensus-building initiatives and research. Consensus-building is essential for engaging a diverse group of experienced knowledge users in co-developing and supporting a solution where none readily exists or is less optimal. Patients and caregivers provide invaluable insights for building consensus in decision-making around healthcare, policy and research.
View Article and Find Full Text PDFRes Involv Engagem
January 2024
Faculty of Nursing, University of Alberta, Edmonton, AB, Canada.
Background: In 2016, we developed a pediatric parent advisory group to inform our research program which creates innovative knowledge translation (KT) tools for parents on priority topics related to acute childhood illness. We implemented a mixed methods strategy to evaluate the experiences of group members. The purpose of this paper is to present the findings from parent evaluations over four years and to discuss our experiences collaborating with the group over a multi-year period.
View Article and Find Full Text PDFCurr Med Res Opin
February 2024
Pfizer Ltd, Tadworth, UK.
Objective: The value of patient involvement to the design, conduct, and outcomes of healthcare research is increasingly being recognized. Patient involvement also provides greater patient accessibility and contribution to research. However, the use of inaccessible and technical language when communicating with patients is a barrier to effective patient involvement.
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