Objective: The aim of this study was to share a single center's experience of prenatal neurosurgical counseling and explore pregnant women's experiences with counseling.
Material And Methods: This retrospective study analyzed data for 81 women who received prenatal counseling in a single institution (same senior pediatric neurosurgeon) over a 6-year period. Additionally, a retrospective questionnaire study was conducted with 33 women who chose to continue their pregnancy, to assess the strengths and weaknesses of counseling and analyze the reasons for their decision.
Results: Spinal dysraphism was the most frequent condition leading to prenatal counseling, followed by conditions affecting the cerebrospinal fluid. 57.6% of the women did not follow the French national recommendations on folic acid supplementation in the periconceptional period, and 38.3% underwent termination of pregnancy (TOP). One-third of the 33 women who answered our questionnaire changed their mind about TOP after counseling, and 50% reported that the information provided influenced their decision.
Conclusion: Prenatal neurosurgical counseling is nowadays an important part of a pediatric neurosurgeon's practice. It provides specific information to the woman to decide whether to continue the pregnancy. Urological concerns are frequent among the malformations encountered. Hence, we conclude that these women should be offered the possibility of seeing a urologist. Areas for improvement include greater awareness regarding folic acid supplementation and improved psychological care. The advantage for a woman of consulting a neurosurgeon consists in receiving information that is as accurate as possible about the level of disability of the future child and about surgery and follow-up.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1016/j.neuchi.2021.11.005 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Foetal achondroplasia: Prenatal diagnosis, outcome and perspectives.
J Gynecol Obstet Hum Reprod
December 2024
URP FETUS 7328, Federation for Research into Innovative Explorations and Therapeutics in Utero, and LUMIERE Platform, University of Paris Cité, Paris, France; Department of Obstetrics and Gynecology, Pitié-Salpêtrière Hospital, APHP, Sorbonne University, Paris, France. Electronic address:
Background: Achondroplasia, due to a specific pathogenic variant in FGFR3, is the most common viable skeletal dysplasia and the diagnosis is mostly done in the prenatal period. Since 2021, the use of Vosoritide, a specific treatment for achondroplasia, validated in phase 3 placebo-controlled trials, has been recommended to significantly increase the height of children and infants. In the light of these new therapeutic prospects, a complete understanding of the pathophysiology of skeletal damages occurring from foetal life is required.
View Article and Find Full Text PDFArnold-Chiari Malformations in Pediatric Patients After Fetal Surgery for Meningomyelocele.
J Clin Med
November 2024
Department of Paediatric Surgery, Faculty of Medicine, Comenius University of Bratislava, 833 40 Bratislava, Slovakia.
(1) : Fetal surgery for meningomyelocele (MMC) should reduce the occurrence of Arnold-Chiari malformations, hydrocephalus, the associated need for craniocervical decompression, and the need for cerebrospinal fluid shunt insertion. Fetal surgery should improve ambulatory status. (2) : We used retrospective analysis of the documentation and descriptive statistics to summarize the clinical data and measured MRI parameters.
View Article and Find Full Text PDFArticle Synopsis
- The study aimed to describe a new prenatal technique for myelomeningocele (MMC) repair using a minimally invasive method with a decellularized human umbilical cord graft for covering the spinal defect.
- A cohort of 57 patients from an ongoing study showed positive postnatal outcomes, with most patients achieving independent or therapeutic ambulation and a low incidence of serious complications like CSF leaks.
- Findings include a significant rate of complete reversal of hindbrain herniation at birth and a manageable percentage of spinal inclusion cysts that required minimal surgical intervention.
Defining pediatric neurosurgery in low-income countries: a cross-sectional study in Ethiopia.
J Neurosurg Pediatr
October 2024
3Division of Neurosurgery, Department of Surgery, Addis Ababa University, Tikur Anbessa Specialized Hospital, Addis Ababa, Ethiopia; and.
Article Synopsis
- * A survey conducted among Ethiopian neurosurgeons revealed that most were general practitioners, with only one being fellowship-trained in pediatric neurosurgery; a significant portion worked in the capital, Addis Ababa, and commonly treated conditions like neural tube defects, hydrocephalus, and trauma.
- * The findings indicate a pressing need for more pediatric neurosurgeons in Ethiopia, with recommendations for establishing training programs and improving early diagnosis and treatment strategies for pediatric patients.
Tethered cord prevalence among patients with prenatal or postnatal myelomeningocele repair.
Childs Nerv Syst
November 2024
Department of Neurological Surgery, Montefiore Medical Center and the Albert Einstein College of Medicine, Bronx, NY, 10467, USA.
Article Synopsis
- - The study investigates outcomes of prenatal versus postnatal surgical repair of myelomeningocele (MMC), a severe form of spina bifida, focusing on factors like spinal cord tethering and other complications.
- - A total of 18 patients were reviewed from 2002 to 2020, with equal groups for prenatal and postnatal repair, and demographic data collected included age, sex, and medical history.
- - Results showed that patients who had prenatal closure experienced fewer detethering procedures and lower rates of requiring a ventriculoperitoneal shunt compared to those with postnatal repair, highlighting potential benefits of prenatal surgery.
Want AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!