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What are we doing to support informal caregivers? A scoping review of caregiver education programs in cancer care. | LitMetric

What are we doing to support informal caregivers? A scoping review of caregiver education programs in cancer care.

Patient Educ Couns

Cancer Health Literacy Research Centre, Princess Margaret Cancer Centre, Toronto, Canada; The Institute for Education Research (TIER), University Health Network, Toronto, Canada; Psychosocial Oncology & Palliative Care, Princess Margaret Cancer Centre, Toronto, Canada; Radiation Medicine Program, Princess Margaret Cancer Centre, Toronto, Canada.

Published: July 2022

AI Article Synopsis

  • The rise in cancer cases is putting a lot of pressure on healthcare systems, and caregivers (usually family members) are taking on more responsibilities, which can be really tough on them.
  • A study looked at education programs for these caregivers and found that many focus mainly on providing emotional support and information.
  • There’s a need for better programs that meet all kinds of caregiver needs, not just the emotional ones, so they can better help their loved ones with cancer and take care of themselves too.

Article Abstract

Objectives: The cancer system is experiencing a rise in cancer prevalence, a workforce shortage, and is resource-stretched. In this environment, informal caregivers (unpaid family caregivers of cancer patients) are required to take on expanded care roles and experience the debilitating effects of caregiver burden. Education programs are increasingly being developed to support caregivers. The aim of this review is to summarize what is known about these programs.

Methods: A scoping review was conducted from May 2019 to January 2020. The literature search yielded 34,906 articles.

Results: 119 articles were included, and ninety-two (77%) were focused on in-person psychoeducational programs.

Conclusion: Most caregiver programs have a unidimensional focus on psychoeducational training, demonstrating a need for more comprehensive programming to address the full spectrum of caregiver needs.

Practice Implications: Clinicians and educators must collaborate to create accessible, equitable education programs that comprehensibly address the needs of unpaid family caregivers beyond addressing psychological aspects of cancer care. This will ensure that a broader range of patients and caregivers are equipped with the knowledge and skills needed to cope with a cancer diagnosis, navigate the health system and to maintain their quality of life.

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Source
http://dx.doi.org/10.1016/j.pec.2021.10.012DOI Listing

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