AI Article Synopsis
- Social media has transformed how families dealing with rare diseases connect, allowing them to support each other and advocate for their children's needs across distances.
- Researchers are utilizing social media platforms to gain insights into the health experiences of patients and their communities.
- The article discusses both the benefits and drawbacks of social media in healthcare, particularly its role in aiding research and care for children with pediatric rheumatic diseases.
Article Abstract
The advent of social media has revolutionized and empowered communities of people living with rare diseases. Social media has enabled families of children with similar pediatric rheumatic diseases (PRDs) to meet regardless of geographic distance, allowing them to support each other and join together to advocate on behalf of their children. Researchers have also leveraged social media to learn about the health of patients and their communities. This article reviews the promises and perils of social media related to health, focusing on its potential use to support research and care of children with PRD.
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| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8630809 | PMC |
| http://dx.doi.org/10.1016/j.rdc.2021.09.005 | DOI Listing |
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