Primary health care is an essential component of effective health systems. The aim of this study aim was to evaluate the quality of primary care in a city in the state of Pernambuco, Brazil. We conducted an exploratory study with 525 service users using structured questionnaires. The quality of primary care was assessed across five dimensions: accessibility, clinical care, professional-user relations, community activities and structure. The findings point to the perpetuation of social vulnerabilities and challenges in achieving equitable universal care. Dissatisfaction rates were highest in the following categories: access to specialist appointments and exams, appointment wait time, and opportunity to make complaints. However, respondents were satisfied with medical and nursing care, particularly in relation to respect, privacy, listening and confidentiality. The findings show that, although health professionals were committed to providing humanized care, fragmentation of care is evident, hampering the provision of adequate and timely follow-up and negatively affecting the quality of care.
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http://dx.doi.org/10.1590/1413-812320212610.10722021 | DOI Listing |
J Intellect Dev Disabil
March 2022
Department of Clinical Epidemiology and Health Economics, School of Public Health, The University of Tokyo, Tokyo, Japan.
Background: We examined the association between intellectual disabilities (ID) and pneumonia severity at admission.
Methods: We extracted patients admitted to hospital for pneumonia from July 2010 to March 2018 using the Diagnosis Procedure Combination database. We measured pneumonia severity using the A-DROP system.
J Intellect Dev Disabil
December 2021
Faculty of Psychology and Educational Sciences, Ghent University, Ghent, Belgium.
This paper presents the findings from a qualitative research project that explored what ten people with intellectual disabilities who receive care and support in a residential care facility deem valuable for living a good life and what the opportunity to manage resources for care and support themselves means to them. With the use of photovoice, the 10 participants documented their care and support, and by extension, their own lives. We describe how the project was carried out and the facilitating and obstructing factors we encountered.
View Article and Find Full Text PDFJ Intellect Dev Disabil
December 2021
Department of Spiritual Care & Chaplaincy studies, Protestant Theological University, Amsterdam, the Netherlands.
Background: Since the life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents.
Method: To explore how parents and siblings of persons with PIMD view siblings' role regarding future care/support for their family member, we interviewed eight parents and 13 siblings of seven persons with PIMD and analysed the data thematically.
Results: While some parents expected that a future care/support role would burden the sibling unfairly, most siblings anticipated such a role and reported no concerns about this future responsibility.
J Intellect Dev Disabil
December 2021
School of Physical and Occupational Therapy, Faculty of Medicine, McGill University, Montreal, Canada.
Background: Providing medical and dental care for adults with developmental disabilities requires specialised care that includes caregiver's perceptions of processes of care as integral to informing care delivery.
Method: We examined the reach and efficacy of a medical-dental clinic serving adults with developmental disabilities as part of a program evaluation in the community setting. Using the RE-AIM framework, we analysed caregivers' perceptions of the processes of care and associations with sociodemographic factors and stress and depression levels.
J Intellect Dev Disabil
June 2022
Applied Disability Studies, Brock University, St. Catharines, Canada.
Background: Parents with intellectual disability, like all other parents, are embedded in networks of capability-enhancing and/or capability-inhibiting relationships. This study investigated links between how parents with intellectual disability experienced their upbringing, continuity and discontinuity in familial relationships, and their assessments of their own parenting.
Method: Structured interviews, incorporating scales and open-ended questions, were conducted with 91 parents in receipt of specialist services for people with intellectual disability, including 82 mothers and 9 fathers.
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