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Implementation of patient-reported outcome dashboards within the electronic health record to support shared decision-making in serious chronic illness.
BMJ Open Qual
January 2025
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Background: Attending to patient-reported outcomes (PROs) using data visualisation dashboards could enhance shared decision-making (SDM) and care delivery for serious chronic illnesses. However, few studies have evaluated real-world strategies and resulting implementation outcomes of PRO dashboards.
Method: From June 2020 to January 2022, we implemented an electronic health record (EHR)-integrated PRO dashboard for advanced cancer and chronic kidney disease.
Relevance of patient-centered actigraphy measures in pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension: a qualitative interview study.
BMC Pulm Med
December 2024
Actelion Pharmaceuticals Ltd, Allschwil, Switzerland.
Background: Pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH) are severe, progressive diseases characterized by key symptoms such as dyspnea and fatigue. These symptoms impair physical functioning, with patients struggling to perform their daily activities. One traditional measure of physical functioning and exercise capacity is the 6-minute walk test (6MWT).
View Article and Find Full Text PDFMeasuring Frailty in Systemic Lupus Erythematosus.
Arthritis Care Res (Hoboken)
December 2024
University of California San Francisco, San Francisco, California.
Objective: Recent research has explored frailty in systemic lupus erythematosus using multiple measures. We examined the agreement among frailty measures and the association of each with cross-sectional and longitudinal health outcomes.
Methods: We used data from the California Lupus Epidemiology Study to examine the following measures of frailty: Systemic Lupus International Collaborating Clinics (SLICC) Frailty Index (SLICC-FI), Short Physical Performance Battery (SPPB), and Fatigue, Resistance, Ambulation, Illness, and Loss of Weight (FRAIL) scale questionnaire.
Care for patients living with chronic conditions using the ICAN Discussion Aid: A mixed methods cluster-randomized trial.
PLoS One
December 2024
Knowledge and Evaluation Research (KER) Unit, Mayo Clinic, Rochester, Minnesota, United States of America.
Objectives: To assess the effectiveness of the ICAN Discussion Aid in improving patients' experience of receiving care for their chronic conditions and health professionals' experience of providing their care.
Methods: We conducted a pragmatic, mixed-methods, cluster-randomized trial of the ICAN Discussion Aid at 8 clinics in 4 independent health systems in the US from January 2017 and to August 2018. Sites were randomized 1:1 in pairs.
Postmastectomy Breast Reconstruction in Irradiated Patients: A 12-year follow-up of Deep Inferior Epigastric Perforator and Latissimus Dorsi Flap Outcomes.
JPRAS Open
December 2024
Department of Plastic surgery and Craniofacial surgery, Karolinska University hospital, Stockholm, Sweden.
Article Synopsis
- The study followed up on irradiated breast cancer patients who had undergone reconstruction using DIEP and LD flaps over a period of 12 years, assessing 67% of the original participants.
- Patient-reported outcomes and aesthetic evaluations were measured, showing no significant differences between the two reconstruction methods in satisfaction, but highlighting that DIEP patients valued breast aesthetics more highly.
- The findings indicated a shift in patient preference from LD to DIEP flaps over time, emphasizing the relevance of long-term studies in understanding satisfaction and outcomes in breast reconstruction.
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