Background: Various patient reported outcome measures (PROMs) are used in idiopathic pulmonary fibrosis (IPF). We aimed to describe their psychometric properties, assess their relationship with 1-year mortality and determine their minimal clinically important differences (MCIDs).
Methods: In a prospective multicentre study, participants with IPF completed the King's Brief Interstitial Lung Disease Questionnaire (K-BILD), the modified Medical Research Council (mMRC) dyspnoea scale, St George's Respiratory Questionnaire (SGRQ) and University of California, San Diego shortness of breath questionnaire (UCSD-SOBQ) three-monthly intervals over a 12-month period. Forced vital capacity (FVC) was matched with questionnaires and mortality was captured. Anchor- and distribution-based methods were used to derive MCID.
Results: Data were available from 238 participants. All PROMs had good internal consistency and high degree of correlations with other tools (except UCSD-SOBQ correlated poorly with FVC). There were significant associations with mortality for K-BILD (hazard ratio 16.67; 95% CI 2.38-100) and SGRQ (hazard ratio 4.65; 95% CI 1.32-16.62) but not with the other PROMs or FVC. The median MCID (range) for K-BILD was 6.3 (4.1-7.0), SGRQ was 7.0 (3.8-9.6), mMRC was 0.4 (0.1-0.5) and UCSD-SOBQ was 9.6 (4.1-14.2).
Conclusions: The K-BILD was related to other severity measures and had the strongest relationship with mortality.
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8495510 | PMC |
| http://dx.doi.org/10.1177/14799731211033925 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Psychometric properties and post-hoc CAT analysis of the pediatric PROMIS® item banks anxiety and depressive symptoms in a combined Swedish Child and Adolescent Psychiatry and School sample.
Qual Life Res
January 2025
Department of Clinical Science, Child- and Adolescent Psychiatry, Umeå University, 90185, Umeå, Sweden.
Purpose: The objective of this study is to assess the psychometric properties and reliability of the Swedish Patient-Reported Outcomes Measurement Information System (PROMIS) item banks for anxiety and depressive symptoms with item response theory analysis and post-hoc computerized adaptive testing in a combined Swedish Child and Adolescent Psychiatry (CAP) and school sample.
Methods: Participants (n = 928, age 12-20) were recruited from junior and high schools and Child and Adolescent Psychiatry Clinics in the region of Västerbotten. Unidimensionality, local independence, and monotonicity was tested.
Comparison of Resilience Measures in Chinese Adolescents: Based on Item Response Theory.
J Pers Assess
January 2025
School of Psychology, Guizhou Normal University, Guiyang, China.
Resilience is an important ability that helps adolescents resist stress from everyday life. While resilience has been measured in many ways, no measures have been developed specifically for the adolescent population. This study analyzed three popular resilience questionnaires, evaluated their psychometric properties using item response theory and explored their applicability.
View Article and Find Full Text PDFTranslation, cross-cultural adaptation, and psychometric properties of the Finnish version of the Malocclusion Impact Questionnaire (MIQ).
Acta Odontol Scand
January 2025
Research Unit of Population Health, University of Oulu, Oulu, Finland; The Wellbeing Service County of North Ostrobothnia, Pohde, Finland; Medical Research Center Oulu, Oulu University Hospital and University of Oulu, Oulu, Finland.
Objectives: This study aimed to translate and adapt the Malocclusion Impact Questionnaire (MIQ) into Finnish; to estimate its psychometric properties when applied to Finnish adolescents; and to estimate the effect of demographic characteristics on the perceived impact of malocclusion.
Methods: The Finnish version of MIQ (MIQ-Fi) was established through translation, back-translation, and a pilot study. Psychometric properties were estimated using factorial validity (confirmatory factor analysis [CFA]), convergent validity (Average Variance Extracted [AVE]), and reliability (αordinal and ω).
Measuring adjustment of siblings of children with disabilities: psychometric properties across translations, age groups and informants.
Int J Dev Disabil
October 2024
Clinical Child & Family Studies, Amsterdam Public Health, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
Objectives: The Negative Adjustment Scale (NAS) is used to measure adjustment to having a sibling with a disability. However, several adaptations to the scale have been made, and implementation varies across studies and countries. This study examined the psychometric properties across different versions and provides directions for future use and development of the NAS.
View Article and Find Full Text PDFThe Creation of the Arabic Version of the Hyperhidrosis Quality of Life Index (HidroQoL©) with Validation and Cross-Cultural Adaptation.
Clin Cosmet Investig Dermatol
January 2025
Department of Dermatology, College of Medicine, King Saud University, Riyadh, Saudi Arabia.
Purpose: Hyperhidrosis (HH) is characterized by excessive sweating, which can significantly affect quality of life. The Hyperhidrosis Quality of Life Index (HidroQoL©) is the latest tool that has been developed and validated for assessing the quality of life of patients with HH. Because of the absence of an Arabic version of the HidroQoL©, this research aimed to create, validate, and adapt the HidroQoL© into Arabic.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!