Mobile App for Parental Empowerment for Caregivers of Children With Autism Spectrum Disorders: Prospective Open Trial.

JMIR Ment Health

Department of Psychiatry, Hôpital St Antoine, Assistance Publique Hôpitaux de Paris, Paris, France.

Published: September 2021

Background: Conflicting data emerge from literature regarding the actual use of smartphone apps in medicine; some considered the introduction of smartphone apps in medicine to be a breakthrough, while others suggested that, in real-life, the use of smartphone apps in medicine is disappointingly low. Yet, digital tools become more present in medicine daily. To empower parents of a child with autism spectrum disorder, we developed the Smartautism smartphone app, which asks questions and provides feedback, using a screen with simple curves.

Objective: The purpose of this study was to evaluate usage of the app by caregivers of individuals with autism spectrum disorders.

Methods: We conducted a prospective longitudinal exploratory open study with families that have a child with autism spectrum disorder. Data were recorded over a period of 6 months, and the outcome criteria were (1) overall response rates for a feedback screen and qualitative questionnaires, and (2) response rates by degree of completion and by user interest, based on attrition.

Results: Participants (n=65) had a very high intent to use the app during the 6-month period (3698/3900 instances, 94.8%); however, secondary analysis showed that only 46% of participants (30/65) had constant response rates over 50%. Interestingly, these users were characterized by higher use and satisfaction with the feedback screen when compared to low (P<.001) and moderate (P=.007) users.

Conclusions: We found that real or perceived utility is an important incentive for parents who use empowerment smartphone apps.

International Registered Report Identifier (irrid): RR2-10.1136/bmjopen-2016-012135.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8482191PMC
http://dx.doi.org/10.2196/27803DOI Listing

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