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Evolution of congenital haemophilia care in Taiwan. | LitMetric

Evolution of congenital haemophilia care in Taiwan.

J Formos Med Assoc

Hemophilia Care and Research Center, Tri-Service General Hospital, Taipei, Taiwan; Department of Orthopedics, Tri-Service General Hospital, National Defense Medical Center, Taipei, Taiwan.

Published: March 2022

AI Article Synopsis

  • - Haemophilia care in Taiwan has significantly improved over the past 35 years, with the establishment of treatment centers and full reimbursement for treatment under the National Health Insurance (NHI) program.
  • - Key advancements include better early diagnosis, comprehensive care options, and effective treatments for related conditions, resulting in reduced morbidity and improved quality of life for people with haemophilia.
  • - Current initiatives aim to increase prophylaxis rates through the use of reimbursed extended half-life recombinant factor products, showcasing Taiwan's progress and experience in haemophilia management.

Article Abstract

Haemophilia care in Taiwan has come a long way over the past 35 years, from the absence of specialised haemophilia treatment centres before 1984 to the establishment of treatment centers in the majority of medical centers, the listing of haemophilia as a catastrophic illness with full treatment reimbursement by the Taiwan National Health Insurance (NHI), and the implementation of full NHI coverage for prophylaxis therapy. This has led to outcome improvements such as reduced bleed-related morbidity and mortality, fewer viral infections, and enhanced overall multi-modality care. Most people with haemophilia (PWH) are now able to live normal, active lives. Early diagnosis has improved through increased awareness, physician education, and prenatal diagnosis; while comprehensive care, including state of the art rehabilitation and orthopaedic management for haemophilic arthropathy, eradication therapy for chronic hepatitis C, and better treatments for human immunodeficiency virus, allows PWH to enjoy a better quality of life and improved survival. Efforts are now being made to raise prophylaxis rates through full NHI reimbursement and the use of extended half-life recombinant factor products. Overall, Taiwan has made great strides in haemophilia care and we would like to share these experiences for the benefit of all healthcare providers involved in haemophilia care.

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Source
http://dx.doi.org/10.1016/j.jfma.2021.07.017DOI Listing

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