[Making COVID-19 research data more accessible-building a nationwide information infrastructure].

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz

Leibniz-Institut für Präventionsforschung und Epidemiologie - BIPS, Bremen, Deutschland.

Published: September 2021

Public health research and epidemiological and clinical studies are necessary to understand the COVID-19 pandemic and to take appropriate action. Therefore, since early 2020, numerous research projects have also been initiated in Germany. However, due to the large amount of information, it is currently difficult to get an overview of the diverse research activities and their results. Based on the "Federated research data infrastructure for personal health data" (NFDI4Health) initiative, the "COVID-19 task force" is able to create easier access to SARS-CoV-2- and COVID-19-related clinical, epidemiological, and public health research data. Therefore, the so-called FAIR data principles (findable, accessible, interoperable, reusable) are taken into account and should allow an expedited communication of results. The most essential work of the task force includes the generation of a study portal with metadata, selected instruments, other study documents, and study results as well as a search engine for preprint publications. Additional contents include a concept for the linkage between research and routine data, a service for an enhanced practice of image data, and the application of a standardized analysis routine for harmonized quality assessment. This infrastructure, currently being established, will facilitate the findability and handling of German COVID-19 research. The developments initiated in the context of the NFDI4Health COVID-19 task force are reusable for further research topics, as the challenges addressed are generic for the findability of and the handling with research data.

Download full-text PDF

Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8298983PMC
http://dx.doi.org/10.1007/s00103-021-03386-xDOI Listing

Publication Analysis

Top Keywords

public health
8
task force
8
findability handling
8
data
7
[making covid-19
4
covid-19 data
4
data accessible-building
4
accessible-building a nationwide
4
a nationwide infrastructure]
4
infrastructure] public
4

Similar Publications

Want AI Summaries of new PubMed Abstracts delivered to your In-box?

Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!