Bringing up a child with the diagnosis of autism spectrum disorder (ASD) can be highly stressful. This study aimed to assess perceived stress, level of spousal support, emotion-focused coping styles, and other potentially associated factors among mothers accompanying children diagnosed with ASD for care from selected institutions in Kerala, India. Consenting parents accompanying children to therapeutic programs in selected institutions were administered a semi structured interview schedule incorporating questions of the vernacular version of the Perceived Stress Scale (PSS-10), emotion-based coping strategies, spousal support in care of the child diagnosed with ASD, and possible-associated factors. Since internal consistency of stress and coping questionnaires were low, principal component analysis was used to extract composite variables with reasonable psychometric characteristics for stress and coping. Ordinal logistic regression was performed with a three-level stress category as the outcome variable. High stress was significantly associated with low spousal support (adjusted odds ratio or AOR: 2.80; 95% confidence intervals or CI 1.28-6.11), having a completely dependent child (AOR 4.24 [95% CI 1.92-9.38]), and low acceptance levels (AOR 2.60 [95% CI 1.14-5.89]). Unlike mothers with high spousal support, mothers with low spousal support were likely to have difficulty in interacting with others ( = 0.02) and a low level of acceptance ( = 0.05). Spousal support is important to preserve psychological health in mothers of children diagnosed with ASD. Mothers with low spousal support may need interventions that help increase acceptance levels or decrease avoidant behavior.
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http://dx.doi.org/10.1055/s-0041-1727559 | DOI Listing |
Turk Arch Pediatr
January 2025
Department of Obstetrics and Gynaecology, All India Institute of Medical Sciences, Guwahati, Assam, India.
Objective: The personal experiences of breastfeeding healthcare workers may influence the quality of breastfeeding support provided. This study explored the breastfeeding experiences of nurses and support staff in South India. Materials and Methods: A qualitative exploratory study using focus group discussions (FGDs) was conducted among nurses and support staff of a newly established tertiary care hospital in South India.
View Article and Find Full Text PDFHeliyon
December 2024
College of Nursing, Hanyang University, Seoul, Republic of Korea.
Background: Preemptive kidney transplantation (PKT) is associated with reduced dialysis-related morbidity and improved graft survival, which has led to an increase in the prevalence of PKT. The distinct clinical pathways of PKT and non-preemptive kidney transplantation (NPKT) patients may affect their ability to perform self-care, a key factor in post-transplant recovery. However, there is ongoing controversy regarding which group demonstrates better self-care abilities, highlighting the need to explore the factors influencing self-care in each group.
View Article and Find Full Text PDFArch Phys Med Rehabil
January 2025
H. Ben Taub Department of Physical Medicine and Rehabilitation, Baylor College of Medicine, Houston, TX, USA; Brain Injury Research Center, TIRR Memorial Hermann, Houston, TX, USA.
Objective: To test the efficacy of a randomized control trial low-touch mobile health intervention designed to promote care partner self-awareness and self-care.
Design: This randomized controlled trial (RCT) included a baseline assessment of self-report surveys of health-related quality of life (HRQOL), care partner-specific outcomes, and the functional/mental status of the person with TBI, as well as a 6-month home monitoring period that included three daily questions about HRQOL, monthly assessments of 12 HRQOL domains, and the use of a Fitbit® to continuously monitor physical activity and sleep. HRQOL surveys were repeated at 3- and 6-months post-home monitoring.
Psychooncology
January 2025
Department of Behavioral Science, The University of Texas MD Anderson Cancer Center, Houston, Texas, USA.
Background: Parents with advanced cancer and their partners are more likely to experience psychological distress than their counterparts without minor children. Greater relationship functioning may support parents in distress.
Aims: The current study seeks to explore couples' cancer-related parenting communication behaviors, perception and their associations with psychological and relational wellbeing.
Am J Kidney Dis
January 2025
Department of Nephrology and Hypertension, University Medical Center Utrecht, Utrecht, the Netherlands.
Rationale & Objective: Spousal caregivers participate extensively in the care of patients with kidney failure. Although previous studies suggested that these caregivers experience a high burden, a comprehensive understanding of the determinants of this burden and strategies to alleviate it are needed. Therefore, this study sought to explore the contributing and alleviating determinants of burden in spousal caregivers of patients with kidney failure.
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