The current study analyzed blogs written by four Dutch parents of children with profound intellectual and multiple disabilities, with the aim of deepening the understanding of the parents' concerns. Thematic analysis was conducted and five main themes were identified: addressed the impact of unpredictability present in the everyday lives of parents, described the complexity of concurrently cherishing the child and grieving various types of loss, detailed imbalances and struggles related to parents' personal resources, specified social consequences, and reflected on stress and support associated with professional care delivery. The study findings demonstrate how care professionals should acknowledge parents' vulnerabilities by being aware of their existential distress and empowering parents to exercise control of family thriving.
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| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8252404 | PMC |
| http://dx.doi.org/10.1177/23333936211028170 | DOI Listing |
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