Objectives: To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases.
Methods: This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context.
Results: The participants experienced two types of grief, one for the loss of a "healthy family member" and the other for the "announced death" of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles.
Conclusions: The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs.
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8253529 | PMC |
| http://dx.doi.org/10.17533/udea.iee.v39n2e09 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Family dynamics and support network of family caregivers of people with progressive cancer.
Rev Gaucha Enferm
January 2025
Universidade Federal de São Paulo, Escola Paulista de Enfermagem, São Paulo, São Paulo, Brasil.
Objective: To analyze family dynamics, the support network of family caregivers of individuals with progressive cancer, and their needs for comprehensive care.
Method: Qualitative, descriptive study developed based on the Calgary Family Assessment Model framework. It was conducted from September 2022 to April 2023, through participant observation at a public health institution in São Paulo and interviews with six family caregivers.
Implementation of the care agreements of the CACTO program for mothers of children with autism spectrum disorder.
Rev Gaucha Enferm
January 2025
Universidade Estadual de Feira de Santana. Departamento de Saúde. Programa de Pós-Graduação em Saúde Coletiva. Feira de Santana, Bahia, Brasil.
Objective: to analyze the implementation of care agreements developed in the CACTO program for mothers of children with Autism Spectrum Disorder.
Method: exploratory, qualitative study, guided by Unitary Caring Science and the Implementation Science methodological framework, based on the Consolidated Conceptual Framework for Implementation Research. Conducted with 20 mothers of children with Autism Spectrum Disorder, between April 2023 and February 2024, during care meetings developed in a non-governmental organization.
Predicting ALS informant distress from cognitive and behavioural change in people with ALS.
J Neurol
January 2025
Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.
Background: The cognitive and behavioural changes that occur in around 50% of people with amyotrophic lateral sclerosis (ALS) may significantly affect people around them, contributing to heightened burden, anxiety, and depression. Despite existing evidence linking behavioural impairment to caregiver distress, the role of cognitive impairment remains less clear, with mixed findings on its impact.
Methods: This study assessed the influence of cognitive and behavioural impairments in people with ALS on the distress of their nominated informants.
Impulse control disorders in Parkinson's disease: What's new?
J Neurol
January 2025
Parkinson's Disease Research Clinic, Macquarie University, 75 Talavera Road, Sydney, NSW, 2109, Australia.
Impulse Control Disorders (ICDs) are increasingly recognized as a significant non-motor complication in Parkinson's disease (PD), impacting patients and their caregivers. ICDs in PD are primarily associated with dopaminergic treatments, particularly dopamine agonists, though not all patients develop these disorders, indicating a role for genetic and other clinical factors. Studies over the past few years suggest that the mesocorticolimbic reward system, a core neural substrate for impulsivity, is a key contributor to ICDs in PD.
View Article and Find Full Text PDFAdvanced Care Planning for the Orthopaedic Patient.
J Bone Joint Surg Am
January 2025
Department of Orthopaedic Surgery, Warren Alpert Medical School, Brown University, Providence, Rhode Island.
➢ Advanced care planning most commonly refers to the act of planning and preparing for decisions with regard to end-of-life care and/or serious illness based on a patient's personal values, life goals, and preferences.➢ Over time, advanced care planning and its formalization through advanced directives have demonstrated substantial benefits to patients, their families and caregivers, and the larger health-care system.➢ Despite these benefits, advanced care planning and advanced directives remain underutilized.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!