Informatics-enabled citizen science to advance health equity.

J Am Med Inform Assoc

Advisory Board, Residents for Respectful Research, Public Housing Association of Residents, Charlottesville, Virginia, USA.

Published: August 2021

The COVID-19 pandemic has once again highlighted the ubiquity and persistence of health inequities along with our inability to respond to them in a timely and effective manner. There is an opportunity to address the limitations of our current approaches through new models of informatics-enabled research and clinical practice that shift the norm from small- to large-scale patient engagement. We propose augmenting our approach to address health inequities through informatics-enabled citizen science, challenging the types of questions being asked, prioritized, and acted upon. We envision this democratization of informatics that builds upon the inclusive tradition of community-based participatory research (CBPR) as a logical and transformative step toward improving individual, community, and population health in a way that deeply reflects the needs of historically marginalized populations.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8344908PMC
http://dx.doi.org/10.1093/jamia/ocab088DOI Listing

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