Purpose: This paper explores parents' experiences of breaking news and communicating to the child with cancer and their siblings, and identifies the supports parents request to help them in this role. This paper represents one component of a wider action research study which employed mixed methods to explore supports needed by parents of children with a cancer diagnosis in the Republic of Ireland.
Research Design: This paper reports on the survey phase of the study, which involved the distribution of a postal survey to 550 families of children in cancer treatment and remission. This survey included four open-ended questions exploring parents' experiences of breaking news and communicating about the illness to the ill child and his/her siblings. Descriptive statistics on the profile of the parents were generated with computer software package SPSS and qualitative responses were analyzed using the survey questions as the initial framework.
Findings: Parents identified four interventions that helped ease the distress of these difficult conversations: coaching, resources, team engagement, and play therapy. Parents expressed concern for siblings, describing them as "suffering" and "forgotten". Parents requested four sibling-specific interventions: the creation of resources for siblings, therapeutic support, coaching for parent-sibling conversations, standardize a family meeting with the multi-disciplinary team that includes siblings.
Implications For Psychosocial Providers: This paper demonstrates how the practical supports requested by parents which are consistent with the principles embedded within the internationally defined psychosocial standards of care could be translated into practice when supporting parents to communicate with children in the context of pediatric cancer.
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http://dx.doi.org/10.1080/07347332.2021.1890305 | DOI Listing |
J Family Med Prim Care
December 2024
Department of Research Development and Cooperation, Pakistan Medical Research Council, Islamabad, Pakistan.
Background: Breaking bad news is one of the most difficult tasks for practicing doctors, especially for those working in health care specialties where life-threatening diseases are diagnosed and managed routinely. Our aim was to elicit the knowledge and practices of doctors and identify barriers faced by them in disclosure of bad news across the provinces of Pakistan.
Methods: Cross-sectional, multi-centered study supported by an external grant in 15 Government and Private Hospitals across Pakistan.
PLoS One
January 2025
Academic Unit for Ageing & Stroke Research, Bradford Teaching Hospitals NHS Foundation Trust, Bradford, United Kingdom.
Background: Understanding recovery is important for patients with stroke and their families, including how much recovery is expected and how long it might take. These conversations can however be uncomfortable for stroke unit staff, particularly when they involve breaking bad news. This study aimed to begin development of a novel complex intervention to improve conversations about recovery on stroke units.
View Article and Find Full Text PDFPediatr Radiol
January 2025
Paediatric and prenatal radiology department, Hôpital Timone Enfants, APHM, 264 rue Saint Pierre, Marseille, 13005, France.
Effective communication with the child and his/her parents is of paramount importance in our daily work in paediatric radiology to establish a trusting relationship and enhance satisfaction for both patients and physicians. Although communication skills and empathy can be effectively taught, and efforts have been made in this area in medical schools, there is still much room for improvement, as communication skills tend to decline throughout medical training. Certain methods are valuable for conducting effective consultations with both the child and the parents, not only when breaking bad news.
View Article and Find Full Text PDFInt J Appl Basic Med Res
November 2024
Resident Physician, West Virginia University United Hospital Centre, Bridgeport, West Virginia, USA.
Background: Due to lack of formal training, young doctors cannot deliver bad news in a way that is expected by patients and their attendants, thereby jeopardizing doctor-patient relationship.
Aim: The aim of this study was to train interns about "breaking bad news" to the patients using a structured module.
Materials And Methods: A workshop comprising interactive lectures and videos followed by debriefing, and discussion was conducted for interns.
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