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Design and implementation of an action plan for justice, equity, diversity, and inclusion within the Clinical Genome Resource.
Am J Hum Genet
January 2025
National Human Genome Research Institute, National Institutes of Health (NIH), Bethesda, MD, USA.
How might members of a large, multi-institutional research and resource consortium foster justice, equity, diversity, and inclusion as central to its mission, goals, governance, and culture? These four principles, often referred to as JEDI, can be aspirational-but to be operationalized, they must be supported by concrete actions, investments, and a persistent long-term commitment to the principles themselves, which often requires self-reflection and course correction. We present here the iterative design process implemented across the Clinical Genome Resource (ClinGen) that led to the development of an action plan to operationalize JEDI principles across three major domains, with specific deliverables and commitments dedicated to each. Active involvement of consortium leadership, buy-in from its members at all levels, and support from NIH program staff at pivotal stages were essential to the success of this effort.
View Article and Find Full Text PDFLessons learned and future perspectives from the PRO-HF trial.
Heart Fail Rev
January 2025
Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT, USA.
Developing a patient toolkit for opioid use and management through co-creation.
Patient Educ Couns
January 2025
Office of Professional Development and Educational Scholarship, Queen's University, 385 Princess Street, Kingston, ON K7L 1B9, Canada.
Canada has been experiencing an opioid use crisis, and urgent efforts are being made to stem the tide. With funding support from Health Canada, the Association of Faculties of Medicine of Canada (AFMC) recently developed a series of asynchronous online bilingual modules to educate key players across the medical education spectrum on chronic pain and opioid use. The curriculum for the modules which informed the development of the Patient-Physician Partnership Toolkit was co-created through an authentic collaboration between healthcare professionals (HCPs), and patient subject matter experts who were patients with lived experience.
View Article and Find Full Text PDFSituational analysis of malaria in Cabo Verde: From endemic control to elimination, history, cases data and challenges ahead.
PLOS Glob Public Health
January 2025
Laboratoire d'Ecologie Vectorielle et Parasitaire (LEVP), Université Cheikh Anta Diop de Dakar, Dakar, Senegal.
On 12 January 2024, Cabo Verde was officially certified by the WHO as a malaria-free country after six consecutive years without local transmission. This study analysed the malaria history of Cabo Verde from 1953 to certification in 2024, highlighted the valuable lessons learned, and discussed challenges for prevention reintroduction. Malaria data from the last 35 years (1988-2022) were analysed using descriptive analyses, and cases were mapped using the USGS National Map Viewer.
View Article and Find Full Text PDFCharting a new vision: lessons on from a network of biology educators.
J Microbiol Biol Educ
January 2025
STEM Education Center, University of Arkansas at Little Rock, Little Rock, Arkansas, USA.
The 2011 report outlined several recommendations for transforming undergraduate biology education, sparking multiple pedagogical reform efforts. Among these was the Promoting Active Learning and Mentoring (PALM) network, an NSF-funded program that provided mentorship and training to instructors on implementing active learning in the classroom. Here, we provide a perspective on how members of the biology education community in PALM view the recommendations of , drawing upon our experiences both as members of PALM and as leaders of an associated project funded by another NSF grant that hosted PALM alumni at various conferences.
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