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The use of portable hemoglobin measuring devices is widespread. In this context, the company HemoCue® has put on the market a new device, the Hb801. It uses a whole blood absorbance measurement method and not the azidmethemoglobin measurement method used by HemoCue's older devices.
View Article and Find Full Text PDFEmployment, occupation, and income in adults with neurofibromatosis 1 in Denmark: a population- and register-based cohort study.
Orphanet J Rare Dis
November 2023
Childhood Cancer Research Group, Danish Cancer Institute, Strandboulevarden 49, 2100, Copenhagen, Denmark.
Background: Little is known about employment status, occupation, and disposable income in adults with NF1.
Methods: From the Danish National Patient Registry and database of two national Centers for Rare Diseases, we identified 1469 adults with NF1, who were matched to 11,991 randomly selected population comparisons on sex and birth year and month. Annual information on employment, occupation and disposable income was ascertained from national registries in 1980-2019.
Cohort profile: life with neurofibromatosis 1 - the Danish NF1 cohort.
BMJ Open
September 2022
Childhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark
Purpose: The Danish neurofibromatosis 1 (NF1) cohort was initiated to study health-related, socioeconomic and psychological consequences of living with the monogenetic disorder NF1 using a nationwide and population-based approach.
Participants: The cohort includes all 2467 individuals in Denmark who were hospitalised with or due to NF1 from 1977 to 2013 or registered in the RAREDIS Database (1995-2013), a national clinical database for rare diseases, or both. A comparison cohort matched to individuals with NF1 on sex and date of birth was identified in the Civil Registration System (n=20 132).
Pregnancy outcomes in women with neurofibromatosis 1: a Danish population-based cohort study.
J Med Genet
March 2022
Childhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Background: The probability of a pregnancy, live birth, stillbirth and abortion has never been assessed in women with neurofibromatosis 1 (NF1) in a large population-based study.
Methods: We included 1006 women (15-49 years) registered with NF1 in the Danish National Patient Registry or followed in two national Centers for Rare Diseases and 10 020 women from the Danish population. Information on pregnancy outcomes was ascertained from health registries.
Multisystem burden of neurofibromatosis 1 in Denmark: registry- and population-based rates of hospitalizations over the life span.
Genet Med
June 2020
Childhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Purpose: The aim was to assess lifetime risk for hospitalization in individuals with neurofibromatosis 1 (NF1).
Methods: The 2467 individuals discharged with a diagnosis indicating NF1 or followed in a clinical center for NF1 were matched to 20,132 general population comparisons. Based on diagnoses in 12 main diagnostic groups and 146 subcategories, we calculated rate ratios (RRs), absolute excess risks (AERs), and hazard ratios for hospitalizations.
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