The Indian population, which includes those who denote themselves as "Asian Indian," "Indian," or "East Indian" on the census, represents the second largest group of Asians in the United States. Despite our growing numbers, research suggests that adequate health care is lacking for this community. The challenges caused by this insufficient care are amplified at the end of life, where intergenerational, culturally derived values and concerns collide to shape expectations. This essay uses Atul Gawande's Being Mortal (2014), which addresses palliative care and end-of-life decision-making, as a launching point for analyzing the role of Indian culture in end-of-life care and discussing implications for providing culturally competent medical practice. The role of intergenerational expectations of care and familial duty are key themes in Gawande's text, and the book represents a missed opportunity to explicitly discuss these values in a clinical context. Three guiding concerns are suggested as addenda to end-of-life care discussions: eliciting the patient's thoughts on advanced directives, on the roles of family members, and about preferences for disclosure regarding serious diagnoses.
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http://dx.doi.org/10.1353/pbm.2021.0012 | DOI Listing |
Nutr Clin Pract
January 2025
School of Health Professions, Rutgers University, Newark, New Jersey, USA.
Background: There are numerous articles, book chapters, and published guidelines on the topic of clinical ethics in the use of artificially administered nutrition and hydration, which often incorporates end-of-life (EOL) nutrition care and support. Components of clinical ethics involve the importance of ethical principles, patient-centered care, and shared decision-making. However, there is sparse information on how to educate patients and caregivers on this subject.
View Article and Find Full Text PDFSAGE Open Nurs
January 2025
Arbel Geriatric Center - Moria Group, Petah Tikva, Israel.
Background: Geriatric nurses provide end-of-life care based on the five pillars of aging. This systematic review assesses the emotions and feelings of geriatric nurses during end-of-life care. It considers the prevalence, triggers, and intensity of emotional responses among geriatric nurses.
View Article and Find Full Text PDFMed J Armed Forces India
April 2024
Senior Advisor (Medicine) & Gastroenterologist, Command Hospital (Southern Command), Pune, India.
Background: Acute-on-chronic liver failure (ACLF) is a life threatening disease. This study seeks to identify factors that contribute to greater financial burden in ACLF.
Methods: In total, 55 patients were included.
Plast Reconstr Surg Glob Open
January 2025
Division of Plastic and Reconstructive Surgery, Department of Surgery, Brigham and Women's Hospital, Boston, MA.
Background: Surgical drains are commonly used in breast surgery and breast reconstruction for seroma prevention. Although many surgeons are aware that surgical drains can cause considerable discomfort to patients, less is understood about the specific impacts of drains on postoperative pain and quality of life (QOL).
Methods: A cross-sectional survey was conducted among patients at our institution who had previously undergone mastectomy or breast reconstruction procedures to better understand patients' experiences with surgical drains.
Palliat Care Soc Pract
January 2025
Faculté des Sciences Infirmières, Université Laval, Québec, QC, Canada.
Background: Informed end-of-life decision-making requires a high level of death literacy. We still know little about the general population's level of knowledge and its determinants.
Aim: To assess knowledge of the general population regarding the legal status and definitions of various end-of-life practices, and to compare the level of knowledge according to individual characteristics known to influence death literacy.
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