Meaningful activities in dementia care can promote the co-construction of narrative identity in caregiving relationships, helping to preserve the sense of self in people with dementia.: Informed by symbolic interactionism and Deweyan transactionalism, the aim of this study was to develop a transactional model of how narrative identity and relationships are promoted through the use of a new technological solution, SENSE-GARDEN, that uses digital technologies and multisensory stimuli to facilitate individualized, meaningful activities.: We conducted a qualitative interview study to explore the experiences of people with moderate to advanced dementia and their caregivers in Norway and Portugal. After using SENSE-GARDEN for 12-16 weeks, 20 participants (7 persons with dementia and 13 caregivers) were interviewed. The interviews were analysed using reflexive thematic analysis.: Three themes were generated: openness, learning, and connection. Findings suggest that SENSE-GARDEN can stimulate emotional experiences, preserve narrative identity, and foster interpersonal relationships. These findings are illustrated through a transactional model.: This study highlights the complex multitude of factors affecting person-environment interactions in which narrative identity and relationships are constructed. To better understand these factors, future work should adopt a holistic approach to studying new methods of creating meaningful activities in dementia care.
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http://dx.doi.org/10.1080/17482631.2021.1920349 | DOI Listing |
J Cross Cult Gerontol
January 2025
Faculty of Psychology and Educational Sciences, Vrije Universiteit Brussel (VUB), Pleinlaan 2, 1050, Brussels, Belgium.
The older population is diversifying. Extensive research has shown the preference of older adults to age in place. Recent research shows that older migrants also prefer to age in place.
View Article and Find Full Text PDFPsychol Trauma
January 2025
Department of Medicine, Section of General Internal Medicine, University of Chicago.
Objective: From the beginning of the COVID-19 pandemic, there has been a proliferation of anti-Asian racism. In addition to being personal targets of racism, members of the Asian American community have also been vicariously exposed to repeated news and social media stories about anti-Asian racism. Emerging research suggests that vicarious exposure to racism during the pandemic is associated with decreased well-being, although mechanisms of action are not yet clear.
View Article and Find Full Text PDFJ Med Humanit
January 2025
The University of North Carolina School of Medicine, 321 Columbia St, Chapel Hill, NC, 27514, USA.
A growing body of literature explores the intersection of eating disorders and identity formation-an entanglement that makes eating disorders particularly challenging to treat. Narrative medicine is a discipline of the health humanities that is interested in bearing witness to patients' stories with a closeness and rigor that enhances clinical care. The pedagogy of the field is the narrative medicine workshop, which mobilizes close-reading of works of art and reflective writing to improve our understanding of Self and Other.
View Article and Find Full Text PDFSSM Qual Res Health
December 2024
Department of Health Promotion, Education, and Behavior, University of South Carolina, Columbia, SC, USA.
Nicotine and tobacco use disproportionally affects sexual and gender minority (SGM) populations in the United States. Social media narratives may contribute to these disparities. This qualitative study delineated perceptions and experiences depicted in SGM-related videos about nicotine vaping on TikTok.
View Article and Find Full Text PDFGerontologist
January 2025
Center on the Ecology of Early Development (CEED), Boston College, Boston, Massachusetts, USA.
Background And Objectives: Chronic kidney disease (CKD) is a major public health concern that uniquely impacts older Black Americans, a population also likely to have family members also diagnosed with CKD. This study aimed to (1) describe how participants viewed their decision preferences considering the experiences of family, and friends previously diagnosed with CKD, and (2) to understand how these social complexities informed their own decisions for future CKD care.
Research Design And Methods: Utilizing a phenomenologically-informed approach, this study explored participants' perceptions of how patients and their family members' experiences with CKD influenced treatment-related decision-making.
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