Background: The art of being prepared to support patients and their families during end of life experiences is not always emphasized in nurse education. Despite the efforts from the American Association of Colleges of Nursing and End of Life Nursing Education Consortium (ELNEC), only 25% of nursing schools across the United States are using their modules.
Objective: The purpose of this study was to explore how student nurses engage with end of life education.
Design: Qualitative study using a grounded theory approach.
Setting: Baccalaureate nursing program located in the rural agricultural western United States.
Participants: Using purposive sampling, a single cohort of baccalaureate student nurses in two focus groups (n = 17; n = 23).
Methods: Using a grounded theory approach, student experiences and engagement with the curriculum were explored. Using the constant comparative method, three researchers coded the data independently and then came together to reach consensus on themes and for the development of the conceptual model.
Results: Three categories emerged from the data to describe the student engagement with the curriculum: Novice, Evolving, and Prepared. The central theme for the Novice students was Being Afraid. Students expressed fear over the unknown and not knowing what to say or do. Becoming Aware was the central theme for the Evolving students which included a blend of being aware of their deficiencies as well as the important aspects of end of life care. The final category was Prepared. The theme for this category was Becoming Accomplished, which included recognition of respectful care, disrespectful care, team work, and advocacy.
Conclusion: End of life education is essential for nursing students to provide appropriate care at end of life, as well as providing improved knowledge, attitudes, and confidence of students. The End of Life Nursing Education Consortium modules, placed strategically within the curriculum, allow nursing students to move through the process of Being Afraid, to Becoming Aware, and finally Becoming Accomplished upon graduation.
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http://dx.doi.org/10.1016/j.nedt.2021.104914 | DOI Listing |
Qual Health Res
January 2025
Department of Criminology, University of Ottawa, Ottawa, ON, Canada.
While the early mental health of girls and boys is similar, as children age, girls tend to report worse mental health than boys. Explanations for these gendered disparities remain elusive. This study seeks to understand the social context in which mental health experiences are shaped.
View Article and Find Full Text PDFJBI Evid Synth
January 2025
University of Gondar, College of Medical and Health Sciences, Gondar, Ethiopia.
Objective: This review will explore the perinatal care experiences of women living with disability in African countries.
Introduction: In many African countries, most women with disability face stigma and discrimination. They are also at risk of unwanted pregnancy and sexually transmitted diseases due to gender-based violence and sexual abuse.
Orphanet J Rare Dis
January 2025
EB House Austria, Department of Dermatology and Allergology, University Hospital of the Paracelsus Medical University, Salzburg, Austria.
Background: Epidermolysis bullosa (EB) is a serious, painful, hereditary and still incurable genetic condition. Due to blistering or wounds on the skin caused by the slightest touch, a person suffering from epidermolysis bullosa is prevented from achieving the same quality of life as a healthy person. Until now, psychosocial research has focused on the description of the problems of people living with the disease.
View Article and Find Full Text PDFBMC Health Serv Res
January 2025
Reform Office, Strategy, Policy and Reform Division, Queensland Health, Floor 13, 33 Charlotte Street, Brisbane, QLD, 4000, Australia.
Background: Commissioning for health services has been implemented as one approach to improve the quality and access to healthcare for First Nations, regional and remote populations. This review systematically scoped the literature for studies that described or evaluated the governance, funding, implementation and outcomes from health service commissioning targeting these groups in Canada, Australia, Aotearoa/New Zealand and the United States (CANZUS nations).
Methods: Seventeen databases were searched for relevant peer reviewed and grey literature studies published in English from 2010 to 2023.
BMC Public Health
January 2025
Department of Social Medicine, School of Public Health, Shanxi Medical University, Taiyuan, Shanxi, 030001, China.
Background: Hearing loss significantly affects children's lives; however, the health-related quality of life (QoL) of children with this disability is not well measured. We sought to develop a reliable and valid measure of health-related QoL in children with hearing loss.
Methods: We constructed a conceptual framework to assess the QoL of children with hearing loss based on the Pediatric Quality of Life Inventory™ Version 4.
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