Introduction: Living with a genetic condition is complex and may be limiting for the adolescent. This situation is considered a stress factor and risk factor for the mental health of both the patient and his family. Objective: To study the levels of psychological adaptation and genetic literacy in adolescents with genetic diseases residing in Argentina.
Methods: Correlational and quantitative design and cross sectional scope. The protocol consisted of an informed consent, a sociodemographic data questionnaire, and the Genetic Health Literacy Screening Tool (REAL G) and Psychological Adaptation Scale (PAS) instruments. The sampling was intentional and composed by 68 cases.
Results: The REAL G indicated low levels of genetic literacy in all its components (decoding, familiarity, comprehension, arithmetic). Regarding psychological adaptation, an M = 4.02 (SD = 0.8) was found for the general scale and high scores for all the dimensions.
Conclusion: Adolescents diagnosed with genetic diseases in Argentina have a good level of psychological adaptation to their disease, despite having low levels of genetic literacy.
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http://dx.doi.org/10.31053/1853.0605.v78.n1.25498 | DOI Listing |
BMC Psychol
January 2025
Department of Nutrition and Dietetics, Faculty of Health Science, Istanbul Beykent University, Istanbul, Turkey.
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BMC Public Health
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Department of Research and Development, Central Denmark Region, The Prehospital Emergency Medical Services, Brendstrupgaardsvej 7, Aarhus N, 8200, Denmark.
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BMC Palliat Care
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DEFACTUM, Central Region Denmark, Aarhus, Denmark.
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Sci Rep
January 2025
General Psychology, Department of Psychology, Isfahan University, Isfahan, Iran.
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Center for Fetal Medicine and Women's Ultrasound, Los Angeles, CA 90048, USA; Department of Obstetrics and Gynecology, David Geffen School of Medicine, University of California, Los Angeles, CA, USA. Electronic address:
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