The purpose of our scoping review was to describe the current use of mHealth technology for long-term assessment of patient-reported outcomes in community-dwelling individuals with acquired brain injury (ABI). Following PRISMA guidelines, we conducted a scoping review of literature meeting these criteria: (1) civilians or military veterans, all ages; (2) self-reported or caregiver-reported outcomes assessed via mobile device in the community (not exclusively clinic/hospital); (3) published in English; (4) published in 2015-2019. We searched Ovid MEDLINE(R) < 1946 to 16 August 2019, MEDLINE InProcess, EPub, Embase, and PsycINFO databases for articles. Thirteen manuscripts representing 12 distinct studies were organized by type of ABI [traumatic brain injury (TBI) and stroke] to extract outcomes, mHealth technology used, design, and inclusion of ecological momentary assessment (EMA). Outcomes included post-concussive, depressive, and affective symptoms, fatigue, daily activities, stroke risk factors, and cognitive exertion. Overall, collecting patient-reported outcomes via mHealth was feasible and acceptable in the chronic ABI population. Studies consistently showed advantage for using EMA despite variability in EMA timing/schedules. To ensure best clinical measurement, research on post-ABI outcomes should consider EMA designs (versus single time-point assessments) that provide the best timing schedules for their respective aims and outcomes and that leverage mHealth for data collection.
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http://dx.doi.org/10.3390/ijerph18042173 | DOI Listing |
Alzheimers Dement
December 2024
University of New Hampshire, Durham, NH, USA.
Background: Resource-constrained rural areas face significant challenges in providing access to healthcare resources, especially for older adults, including those living with Alzheimer's disease and related dementia (ADRD). We seek to address these gaps by equipping six rural community sites in New Hampshire and Maine with tele-rehabilitative equipment. Libraries and community centers that serves youth and older adults, vital in rural communities, are identified as key partners to advance digital health literacy, equity, and telemedicine services for older adults including those living with ADRD, with the University of [blind for review] Center for Digital Health Innovation (CDHI).
View Article and Find Full Text PDFAlzheimers Dement
December 2024
Imperial College London, London, United Kingdom.
Background: Dementia is a complex health condition that poses challenges not only to people living with dementia (PLWD) but to their families, the health system and society as a whole. Even though there is still no cure for dementia, different interventions are showing substantial contribution. mHealth-based assistive technology has shown the potential to provide efficient healthcare for PLWD and their caregivers in cognitive training, health and safety monitoring, educational support, and socialization.
View Article and Find Full Text PDFAlzheimers Dement
December 2024
NYU Aging Incubator, New York, NY, USA.
Background: Most persons living with dementia (PLWD) experience sleep disturbances at some point during their disease. Music interventions are promising to address sleep disturbances because long-term memory for music remains relatively preserved in PLWD. The purpose of this study was to identify the prototype features of the mobile application, entitled, "Calming Music Personalized for Sleep Enhancement in PeRsons living with Dementia" (CoMPoSER) for use among PLWD and their caregivers by conducting the first round of qualitative interviews to co-design the content, features, and layout of the application prototype.
View Article and Find Full Text PDFAlzheimers Dement
December 2024
Wake Forest University School of Medicine, Winston-Salem, NC, USA.
Background: Video interfacing is increasingly being used in research and health care. The 'VCog' Study seeks to determine whether remote research cognitive assessments are reliable and valid by directly comparing results from in-person administration of a standardized cognitive battery to the same battery administered remotely by video. The study also assesses technology use and comfort amongst participants of varying levels of cognitive impairment.
View Article and Find Full Text PDFAlzheimers Dement
December 2024
University of Pennsylvania, Philadelphia, PA, USA.
Background: "Digital health" is a broad term that encompasses a heterogeneous set of scientific concepts and technologies. While digital health tools have the potential to contribute to better health and health care for individuals and communities, they also pose ethical challenges - particularly in the context of Alzheimer's Disease and Alzheimer's Disease and Related Dementias (AD/ADRD). There is no single established ethical framework, however, to aid individuals in evaluating the ethical dimensions of digital health tools in the context of AD/ADRD.
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