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A Pilot of a Telehealth-Hospice Transition Intervention for Children and Young Adults with Cancer.
J Pain Symptom Manage
July 2024
Aflac Cancer & Blood Disorders Center (N.P.D., E.H., A.L., K.W.M., J.L.K., K.E.B.), Children's Healthcare of Atlanta, Atlanta, Georgia, USA; Emory University School of Medicine (K.W.M., J.L.K., K.E.B.), Department of Pediatrics, Emory University, Atlanta, Georgia, USA. Electronic address:
Background And Aims: Telehealth can improve care for patients with progressive cancer enrolling in hospice. Coordinated telehealth visits (patient/family-hospital-hospice) may improve communication, satisfaction with and interdisciplinary hospice collaboration. This pilot examines the impact of three coordinated telehealth visits on these outcomes.
View Article and Find Full Text PDFAltered Symptom Perception in Children With Asthma Is Associated With Poor Childhood Opportunity and Adverse Outcomes.
J Allergy Clin Immunol Pract
April 2024
Department of Pediatrics, Emory University, Atlanta, Ga; Children's Healthcare of Atlanta, Atlanta, Ga.
Background: Effective asthma self-management requires that children recognize their asthma symptoms when they occur. However, some children have altered symptom perception, which impairs their ability to respond to their asthma symptoms in a timely manner.
Objective: To characterize the prevalence and features of altered symptom perception in children aged 5 to 18 years.
Parents' experiences caring for children with acute otitis media: a qualitative analysis.
BMC Prim Care
May 2022
Division of General Academic Pediatrics, Children's Hospital of Pittsburgh of UPMC, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA.
Background: Little is known regarding parents' experiences caring for children with acute otitis media (AOM). This study aimed to explore parents' experiences caring for their child with AOM, identifying symptoms they observed, their thoughts and feelings about those symptoms, how they managed the episode, and what factors caused them to seek medical evaluation.
Methods: From October 2019 to February 2020, we conducted 24 semi-structured cross-sectional interviews with parents of children 3 to 36 months of age with AOM diagnosed at primary care offices associated with the Children's Hospital of Pittsburgh regarding (1) symptoms and behaviors that led parents to believe their child might have AOM; (2) symptoms that were most bothersome to parent and child; (3) what parents did in response to these symptoms; (4) motivations for seeking clinical care; and (5) parents' expectations regarding AOM resolution.
Assessing Practices, Beliefs, and Attitudes about Palliative Care among People with Cystic Fibrosis, Their Caregivers, and Clinicians: Results of a Content Analysis.
J Palliat Med
November 2021
Emory University, Atlanta, Georgia, USA.
Individuals with cystic fibrosis (CF) experience symptoms affecting quality of life and may benefit from palliative care (PC). To present results of content analysis from open-ended survey questions assessing knowledge and experiences with PC among CF stakeholders. Online surveys were sent to CF stakeholders through CF-specific listservs predominantly in the United States.
View Article and Find Full Text PDFResponse to Kavalieratos: Directing the Narrative to Define and Present Standardization in Palliative Care (DOI: 10.1089/jpm.2019.0548).
J Palliat Med
March 2021
Center to Advance Palliative Care of the Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
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