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| http://dx.doi.org/10.7189/jogh.11.03009 | DOI Listing |
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Patient views on continued immune checkpoint inhibition following progression in advanced melanoma: A qualitative study.
Bull Cancer
January 2025
Palliative Care Unit, ULR 2694 METRICS, CHU de Lille, Université de Lille, 59000 Lille, France.
Introduction: Immune checkpoint inhibition has revolutionized the management of metastatic melanoma, including in the final stages of disease progression: because it is well tolerated, some teams do not discontinue it in hopes of slowing disease progression. The risks are that treatment may be continued unnecessarily, causing side effects, and reduce access to specialist palliative care, in addition to increasing the cost of treatment.
Method: We explored the experiences of 10 patients in a university hospital with metastatic melanoma under continued immune checkpoint inhibitors combined with specialist palliative care.
End-of-Life Inpatient Palliative Care for Glioblastoma Multiforme: Lessons Learned from One Case.
Chin Med Sci J
November 2024
Department of Neurosurgery.
Glioblastoma multiforme (GBM) is the most common malignant primary brain tumor with a poor prognosis and limited survival. Patients with GBM have a high demand for palliative care. In our present case, a 21-year-old female GBM patient received inpatient palliative care services including symptom management, mental and psychological support for the patient, psychosocial and clinical decision support for her family members, and pre- and post-death bereavement management for the family.
View Article and Find Full Text PDFHealth-Related Quality of Life and Bereavement in the 2019 Georgia Behavioral Risk Factor Surveillance System.
Behav Sci (Basel)
December 2024
College of Public Health, University of Georgia, Athens, GA 30602, USA.
Poor Self-Rated Health (SRHp) is part of a four-item scale for self-assessment. SRH from the 2019 Behavioral Risk Factor Surveillance Survey (BRFSS) is used to test hypotheses linking population-level well-being influenced by bereavement due to the death of a close friend or relative. By linking the prevalence rates of population-level well-being with exposure to bereavement, we extend our knowledge of this exposure beyond single-person studies.
View Article and Find Full Text PDFInterview Results from a Telehealth Hospice Intervention for Children and Young Adults with Cancer.
J Pain Symptom Manage
December 2024
Aflac Cancer & Blood Disorders Center, Children's Healthcare of Atlanta, Atlanta, GA; Emory University School of Medicine, Department of Pediatrics, Emory University, Atlanta, GA.. Electronic address:
Background And Aims: Surveyed families of children and young adults with cancer who participated in a pilot study of three coordinated telehealth visits (triad of patient/family, hospital clinician, and hospice nurse) during the first month of hospice enrollment found telehealth feasible and were highly satisfied with hospice care. The aim of this study is to further explore adult patient and caregiver perspectives on telehealth, specifically the benefits of telehealth, trade-offs with in-person appointments, and the impact on patient care and family end-of-life preparations.
Methods: This is a single-arm prospective pilot study of patients aged 0-29-with cancer initiating hospice care between 2021-2022 and their caregivers.
Quality of Non-Profit Hospice Affiliated with Integrated Healthcare Systems.
J Pain Symptom Manage
December 2024
Brown University, Providence RI, 02912.
Context: Research shows hospice primary caregivers report better quality of care at Non-Profit (NP) than For-Profit (FP) hospices, but there is variation in quality across NP hospices.
Objective: Examine bereaved caregiver reports of the quality as a factor of whether NP hospices are part of an integrated healthcare system that included an acute care hospital.
Methods: Cross-sectional study of NP Hospices used star ratings and adjusted hospice composite quality scores May 2023 publicly data reported on the Care Compare website.
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