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Conceptualizing impact in community-based participatory action research to engage communities in end-of-life issues.
Palliat Care Soc Pract
May 2022
Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.
Background: A health promotion approach to end-of-life (EoL) care is gaining traction internationally. However, there is a lack of evaluations of the impact of this approach, particularly regarding community-based initiatives. Conceptualizations of impact in participatory action research (PAR) may contribute to understanding ways in which impact can be investigated in community-based health promotion approaches to EoL issues.
View Article and Find Full Text PDFTishelman et al's Response to Morrison: Advance Directives/Care Planning: Clear, Simple, and Wrong (DOI: 10.1089/jpm.2020.0272).
J Palliat Med
January 2021
End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) and Ghent University, Brussels, Belgium.
How do women who choose not to participate in population-based cervical cancer screening reason about their decision?
Psychooncology
June 2008
Karolinska Institutet, Department of NVS/Section for Nursing, Stockholm, Sweden.
In Stockholm, Sweden, women are invited to a cost-free population-based cervical cancer screening programme (PCCSP) at regular intervals. Despite this, many women choose not to attend screening at all or to take opportunistic tests instead. This study explores how women who actively declined participation in the PCCSP reasoned about their choice.
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