Double-edged MAiD death family legacy: a qualitative descriptive study.

BMJ Support Palliat Care

Health and Rehabilitation Sciences, University of Western Ontario, London, Ontario, Canada.

Published: December 2020

Background: Individuals who accompany a loved one through medical assistance in dying (MAiD) have to live with the experience and the psychological, moral and social consequences of their involvement in the process long after the death occurs.

Aim: To explore the legacy of a MAiD death for individuals who accompanied a loved one through the process.

Design: Using a qualitative descriptive approach we conducted semi-structured interviews to collect data from family members who had accompanied a loved one through MAiD. Data were analysed using conventional content analysis.

Setting/participants: 16 family members of 14 patients who received MAiD at a Canadian hospital with an interdisciplinary MAiD programme.

Results: The main theme in the analysis is the opposing tensions experienced by individuals who accompany a loved one through a MAiD death, which we conceptualise as a double-edge experience. This double-edge experience is illustrated through four thematic opposing tensions: (1) support for patient autonomy and ambivalence about the MAiD choice, (2) gratitude for suffering relieved for loved one and grief for lost time with loved one, (3) time as a gift and time as a burden and (4) positive legacy and challenging bereavement experience.

Conclusion: The nature of the MAiD experience for involved families is rooted in complexity, ambiguity and ambivalence and thus resists easy categorisation. Families would benefit from structured psychosocial and spiritual supports that acknowledge this complexity, along with MAiD-specific bereavement support following the death.

Download full-text PDF

Source
http://dx.doi.org/10.1136/bmjspcare-2020-002648DOI Listing

Publication Analysis

Top Keywords

maid death
12
qualitative descriptive
8
individuals accompany
8
accompany loved
8
maid
8
accompanied loved
8
family members
8
loved maid
8
opposing tensions
8
double-edge experience
8

Similar Publications

Beuthin and Bruce's study 'MAiD as human connection: Stories and metaphors of physician providers existential lived experience' in this journal describes the affective experiences of Canadian Medical Assistance in Dying (MAiD) providers. A critical response to this work shows it is based on flawed premises and interpretations of its data, which centers on praising its participants in lethal injection for their very positive emotions. Their study also seems to unproblematically construct people dying by MAiD as "the other," a term that usually describes members of groups subject to individual and systemic oppression.

View Article and Find Full Text PDF

Background: Current proposals for assisted dying in the UK are based on embedding it within a medical, healthcare model. This model is revealing challenges in safeguarding, monitoring and the impact on healthcare.

Objective: To explore if a different model is a safer, pragmatic and realistic alternative.

View Article and Find Full Text PDF

Background: Despite extensive theoretical debate, empirical research on medical aid in dying (MAID) largely has disregarded broader, contextual factors as potential correlates of attitudes in hospice clinicians.

Objective: Informed by institutional theory and neofunctional attitude theory, the objective of the current study was to quantitatively examine hospice clinicians' attitudes toward MAID as functions of institutional characteristics relating to (Aim 1) individual adherence to hospice values and (Aim 2) state law.

Design: We used a cross-sectional design.

View Article and Find Full Text PDF

Want AI Summaries of new PubMed Abstracts delivered to your In-box?

Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!