Objectives: Describe how the availability of assisted living (AL) and dementia-specific AL vary across counties and correlate with demographic and socioeconomic characteristics.
Design: Maps, univariate statistics, and standardized mean differences show the differences between counties with high and low levels of AL market penetration, and between counties with and without dementia-specific AL.
Setting And Participants: Data collected from state agencies on licensed AL communities, capacity, and geographic location, and population characteristics from the Area Health Resource file. We include novel and previously undescribed data on dementia-specific AL licenses in 21 states.
Measures: AL market penetration is reported as the number of AL units or beds per 1000 persons over age 65 years in a county.
Results: In comparison to counties with the lowest AL penetration, high-penetration counties had higher high school and college education attainment (mean 25.3% vs 18.5%) and median annual income ($56,000 vs $46,800), and lower poverty (12.8% vs 17.3%) and unemployment rates (3.9% vs 5.1%). Compared to counties with AL but no dementia-specific care, counties with dementia care had substantially higher college attainment (24.6% vs 17.7%) and had higher urbanity index (3.8 vs 5.6 on a 1-9 scale, 1 most urban). Counties with dementia care also had, on average, 16% more in median household income ($54,200 vs $46,400) and 40% greater home value ($159,800 vs. $113,600).
Conclusions And Implications: Large socioeconomic disparities persist among counties without any AL or low penetration of AL in their borders in comparison to those with high AL penetration, as well as between counties with and without dementia-specific AL communities. There may be a mismatch in need and availability of residential care options for older adults with Alzheimer's disease and related dementias that contributes to the disproportionate share of racial/ethnic minorities with dementia in nursing homes. Lack of available AL beds in the communities where Medicaid individuals reside could make rebalancing efforts doubly difficult, in that Medicaid enrollees may be reluctant to move out of their neighborhoods.
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http://dx.doi.org/10.1016/j.jamda.2020.08.011 | DOI Listing |
Patient Educ Couns
February 2025
From Upstate Medical University, College of Nursing, State University of New York, Syracuse, NY, USA.
Objectives: Care for people living with dementia predominantly takes place at home and is often characterized by multiple hospitalizations throughout the lengthy disease trajectory. Care transitions from the hospital often involve home health care. The purpose of this study was to explore communication challenges experienced by home health nurses to inform communication training needs for home-based dementia care.
View Article and Find Full Text PDFDementia (London)
May 2023
Advocate for the Aging, Henrico County, VA, USA.
Objective: The purpose of this investigation was to understand the dynamics among dementia caregiving, vigilance, and home and community-based service use.
Methods: This paper is derived from a larger, mixed-methods study on caregiving. We used a descriptive qualitative approach to analyze interview data of 30 family caregivers of relatives with dementia.
J Am Med Dir Assoc
November 2020
Center of Innovation for Long-Term Services and Supports, Providence Veterans Administration Medical Center, Providence, RI, USA; Department of Health Services, Policy, and Practice, Brown University School of Public Health, Providence, RI, USA.
Objectives: Describe how the availability of assisted living (AL) and dementia-specific AL vary across counties and correlate with demographic and socioeconomic characteristics.
Design: Maps, univariate statistics, and standardized mean differences show the differences between counties with high and low levels of AL market penetration, and between counties with and without dementia-specific AL.
Setting And Participants: Data collected from state agencies on licensed AL communities, capacity, and geographic location, and population characteristics from the Area Health Resource file.
BMC Health Serv Res
October 2018
Faculty of Medicine, Department of Health Sciences, Lund University, PO Box 157, 221 00, Lund, Sweden.
Background: In dementia care, it is crucial that the chain of care is adapted to the needs of people with dementia and their informal caregivers throughout the course of the disease. Assessing the existing dementia care system with regard to facilities, availability and utilization may provide useful information for ensuring that the professional dementia care and service system meets the needs of patients and their families from disease onset to end of life.
Methods: The aim of this study was to further develop and test a mapping system, and adapt it to a local context.
BMC Fam Pract
October 2018
Department of General Practice, Western Gateway Building, University College Cork, Cork, Ireland.
Background: Pain in people with dementia is underdiagnosed and undertreated. General practitioners (GPs) play a pivotal role in dementia care but their perspectives on pain in people with dementia remains under-researched. The aim of this study was to explore GPs' knowledge and attitudes towards pain assessment and management in people with dementia.
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