Background: Resilience is a protective factor that emerges when individuals are faced with challenges and stressors. Multiple sclerosis (MS) is a chronic neurological disease that introduces a great deal of stress for the individual and his/her support partner. We designed a telehealth resilience-building dyadic program for persons with MS (PwMS) and their support partners.
Objectives: To evaluate the feasibility of the resilience intervention. The secondary objective was to assess the benefits of the intervention.
Methods: Sixty-two participants ( = 49.5 years, 31 dyads of PwMS) and support partners) were recruited to participate. Out of the 31 dyads, 26 were spouses, 2 were cohabiting partners, and 3 were parent-child dyads.
Results: The feasibility goals of the intervention were met, as determined by high participant satisfaction and acceptable completion rates. Preliminary outcomes relating to resilience were positive, suggesting that this intervention had a positive impact on participants.
Conclusions: To the best of our knowledge, this is the first resilience-building intervention delivered via telehealth for both PwMS and their support partners. The study showed an increase in resilience-building skills for addressing the challenges faced by PwMS and their support partners. These skills can be promoted and taught, clinically supported by telehealth, an affordable, accessible healthcare solution. Trial Registration at ClinicalTrials.gov (NCT03555253).
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http://dx.doi.org/10.1177/2055217320941250 | DOI Listing |
Trop Med Infect Dis
November 2024
Department of Medical Microbiology and Infectious Diseases, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB R3E 0J9, Canada.
Marginalized groups in Manitoba, Canada, especially females and people who inject drugs, are overrepresented in new HIV diagnoses and disproportionately affected by HIV and structural disadvantages. Informed by syndemic theory, our aim was to understand people living with HIV's (PLHIV) gendered and intersecting barriers and facilitators across the cascade of HIV care before and during the COVID-19 pandemic. This study was co-designed and co-led alongside people with lived experience and a research advisory committee.
View Article and Find Full Text PDFJ Palliat Med
December 2024
Palliative Care Service, Catalan Institute of Oncology, L'Hospitalet de Llobregat, Barcelona, Spain.
The needs of patients living with malignant neoplasm, and those of their families and care partners, require a multidimensional and interdisciplinary approach. By systematically assessing these needs with validated tools, healthcare professionals can identify and monitor therapeutic objectives, interventions, and results. At the Catalan Institute of Oncology (ICO), we set out to update the ICO Toolkit-a set of instruments for assessing the physical, emotional, and social needs of palliative care patients.
View Article and Find Full Text PDFJ Interpers Violence
December 2024
Tulane University, New Orleans, LA, USA.
Studies largely from high-income countries show that children exposed to intimate partner violence (IPV) face potential adverse health and developmental outcomes. Limited research has focused on whether IPV exposure affects children's early education participation, particularly in low- and middle-income countries where early education is gaining traction. This study examines whether young children aged 3 to 5 years, living in households affected by IPV, are less likely to be enrolled in school using nationally representative data from India.
View Article and Find Full Text PDFJ Interpers Violence
December 2024
Medical University of South Carolina, Charleston, USA.
Emotional support from a non-offending caregiver, often the child's mother, is theorized to help buffer children from the consequences of child sexual abuse (CSA). However, many mothers struggle to provide effective emotional support, suggesting it may be important to assess for factors related to mothers' abilities to support their child. CSA frequently occurs in families that have experienced other types of violence, including intimate partner violence (IPV), and many mothers have their own personal history of child abuse.
View Article and Find Full Text PDFJ Interpers Violence
December 2024
Saint Louis University, MO, USA.
Although food insecurity in its various forms is consistently associated with the presence of intimate partner violence (IPV), it is still unknown if various levels of severity of hunger predict IPV when important extraneous mental health, interpersonal, and social support indicators are considered. The study applied a posttest-only comparison group quasi-experimental design. The samples were randomly drawn from married women ( = 202) in Mozambique.
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