Stigma in the face of cancer disfigurement: A systematic review and research agenda.

Eur J Cancer Care (Engl)

Department of Psychological Medicine, University of Auckland, Auckland, New Zealand.

Published: January 2021

AI Article Synopsis

  • Research highlights the psychological effects of disfigurement and stigma in cancer patients, indicating both negative and occasional positive outcomes on their well-being.
  • A systematic review of 16 studies, published between 1994 and 2020, examined the impacts of stigma, with most showing a detrimental effect, such as feelings of disgust and shame.
  • The conclusions suggest that while some individuals find ways to cope positively, the understanding of stigma and disfigurement in cancer care is still underdeveloped, indicating a need for further research.

Article Abstract

Introduction: An emerging body of work has reported on the psychological impact of disfigurement on cancer patients; however, the extent of research focusing on stigmatisation in this context is unclear. This review aimed to evaluate how stigma associated with disfigurement impacts on cancer patients.

Methods: A systematic review of literature was conducted using SCOPUS, Web of Science, MEDLINE and PubMed databases. Articles were included if they described a qualitative or quantitative study that investigated the impact of stigma and disfigurement on individuals with cancer and/or their families. Included studies were appraised for methodology and narratively synthesised.

Results: Of the 16 studies which met the inclusion criteria, ten were qualitative and six were quantitative. Publication dates ranged from 1994 to 2020. Results highlighted the varying impact of felt and enacted stigma in people with cancer disfigurement. While individuals cope with stigma in different ways and outcomes can sometimes be positive, most articles documented a negative impact to well-being including emotions such as disgust and shame.

Conclusion: This review identified negative and (sometimes) positive consequences of disfigurement and stigma on cancer patients; however, the main finding is that relevant research is in its infancy. Several areas of future research are warranted.

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Source
http://dx.doi.org/10.1111/ecc.13327DOI Listing

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